CORD is Canada's national network for organizations representing all those with rare disorders.

CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.

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Event

Rare Finds Toronto: Indulge…and Do Good!

November 19, 2015
The Burroughes, 639 Queen St. W, Toronto, Ontario
Rare Finds Supports A Unique Research Grants Approach Come for the Treats; Stay to Make a Contribution Sponsored by the Canadian Organization for Rare Disorders and the Rare Disease Foundation. Experience top chefs at a unique culinary cocktail event with all the proceeds to fund rare disease research in Canada. Indulge in rare culinary treats handcrafted by master chefs.  Challenge your epicurean senses with unique combinations of foods, paired with interesting wines and cocktails. Help crown the 1st “Rare Chef Toronto.”  Take part in an auction of “rare finds” with some “unique twists.” Rare Finds Supports A Unique Research Grants Approach As a friend of the rare disease community, you already know the extraordinary challenges faced by families with rare and undiagnosed diseases. There are more than 7,000 rare conditions affecting nearly 3 million Canadians, half of whom are children.  That’s why CORD is partnering with the Rare Disease Foundation (RDF) to deliver the Rare Disease Microgrant Program.  Pioneered by RDF, the program’s unique approach leverages relatively small amounts of money and good ideas to create large impacts for those living with rare disorders. The RDF Microgrant Program brings together: researchers with skills and interest in genetics and other applied fields, patients and families with first-hand knowledge of rare and ultra-rare conditions, and clinicians dedicated to “heroic efforts” when it comes to improving the lives of their patients. Evening starts at 7:00 pm Tickets are $95

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Event

Expert Patient Advocates & 21st Century Therapies Forum

November 19, 2015 - November 20, 2015
Hyatt Regency Toronto, 370 King St. W., Toronto, Ontario
Two-Day Expert Patient Training in Health Technology The purpose of the Canadian Expert Patients in Health Technology is to provide the knowledge, skills, and practical tools to empower patients to take an informed and effective role in assuring that there is sustained, equitable, and affordable access to most appropriate health technologies for all Canadians, and that patients are central to defining, monitoring and evaluating appropriate use for individuals and the patient population collectively. Impact Patients accessing healthcare optimal to individual needs and values: medicines and other therapies, clinical trials and research programs, timely screening and diagnosis, and support to live as well as possible. Activities *   Patient training workshops *   Patient tools and resources Expert Patient Advocates & 21st Century Therapies Forum - Draft Agenda Travel scholarships are available to support transportation and accommodations. To access the patient scholarship application please go to: https://www.surveymonkey.com/r/expertpatient15 Conference room rate of $185/night if you book before October 29, 2015. Please use link below to reserve your room.  https://resweb.passkey.com/Resweb.do?mode=welcome_ei_new&eventID=14128304  Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.

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BECOME A MEMBER

Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.

Individual Membership

For individuals, patients or family members.

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Affiliate Group Membership

For patient-based organizations, support groups or other charitable groups.

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Corporate Leaders Membership

For industry (pharmaceutical/biotech) and corporate associations.

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