CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.Learn More
Today, on International Rare Disease Day, (CORD) welcomes the announcement made by Ontario Health Minister Eric Hoskins to open a new clinic for patients with Ehlers-Danlos Syndrome (EDS), which could be expanded to other rare disorders, as well as his commitment to strike a working group to develop an Ontario approach to a coordinated provincial healthcare system for patients with rare disorders.
Living with Rare Disease. April 28 in Toronto. Innomar Strategies will be holding an interactive seminar to assist clients to better understand the evolving landscape of rare disease, including the impact on patients, payers, manufacturers and health care professionals.
Thursday, April 28, 2016 Toronto Congress Centre | 650 Dixon Road | Toronto, ON Innomar Strategies will be holding an interactive seminar to assist clients to better understand the evolving landscape of rare disease, including the impact on patients, payers, manufacturers and health care professionals. Hear from a diverse panel of stakeholders on this emerging topic. Learn how to raise awareness and navigate this changing marketplace. How do we create equal access for patients with rare disease? How do we demonstrate the societal benefits of therapy while addressing payer sustainability concerns and cost-containment strategies? Morning Plenary: Updates to Canada’s Rare Disease Strategy – Where are we now? Detection, management and sustainability of treatment Development of real world evidence in rare disease Policy and reimbursement for rare disease – Is there a pathway for collaboration? Hear from a variety of perspectives – physicians, patient advocates and payers Afternoon Session*: One-on-one consultation with the stakeholders from the morning plenary to ask your strategic questions (limited sessions available). You should attend if you work in… Market Access Marketing / Market Research Drug Plan Management – Public/Private Payers New Product Launches Patient Support Programs Reserve your spot today! Contact Julia Scott-Wells for more information. Julia Scott-Wells905.681.6551 firstname.lastname@example.org DEADLINE FOR REGISTRATION IS MARCH 28, 2016. * Please note: Afternoon Session availability will be secured upon registration and payment. You may use a credit card or choose to be invoiced by Innomar Strategies.
March 9, 2016 - March 10, 2016
Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, ON
Rare Disease Day Conference and Gala NEW Dates, Updated STRATEGY: March 9-10, 2016! While Rare Disease Day is officially being held on February 29th, unfortunately, Parliamentary sessions are not. CORD believes it is critically important for Canada’s political leaders to be part of Canada’s Rare Disease Strategy. Therefore, we hope everyone will join us in Ottawa on March 9-10, 2016 to celebrate Rare Disease Day with a renewed commitment to a Rare Disease Strategy, recognition of Canadian success in rare diseases, launch of Rare Alliance Canada, and an awesome gala celebration. March 9-10 will be the MOST significant Rare Disease Day in Canada’s history. We need you to help make Canada’s Rare Disease Strategy a reality for 2.8 million Canadians. New Updated Draft Agenda Rare Diseases, Rare Women, Rare Commitment Gala Please join us in recognizing these “Rare Women” and other “Rarity Heroes” at our Rare Disease Day Gala in Ottawa on March 9. Exceptional women from the Parliament, Ministry, and community have been chosen for public acknowledgement at this event. Awards will be presented at the Rare Disease Day Awards Gala starting with a cocktail reception at 6:00 pm followed by dinner at 7:00 pm, with entertainment from the Cross Town Youth Chorus. * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.