Canadian Organization for Rare Disorders

CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info

News & Events

	Rare Disease Day February 28, 2010 More information and events scheduled for the 3rd Annual Rare Disease Day will be posted soon. » More info » View poster
	Café Scientifique hosted by Canadian Organization for Rare Disorders in collaboration with Canadian Institutes of Health Research (CIHR). » More info Topic: Challenges of Diagnosing Rare Disorders Date: Thursday, March 4, 2010 Time: 7:00 p.m. - 9:00 p.m. Location: Toronto (exact location posted shortly)
	Extraordinary Measures This movie is based on Pulitzer Prize winning author Geeta Annand's book "The Cure". This is the true story of John Crowley who upon discovering his two very young children were diagnosed with Pompes disease (a very rare form of muscular dystrophy) set out to find a treatment for them. » More info
	NIH-Funded Research Study The National Human Genome Research Institute at the National Institutes of Health (NIH) is sponsoring a study that seeks to learn more about how parents of children with an undiagnosed medical condition think and feel about their child's condition. » More info

Current Issues

GLOBAL GENES PROJECT
TO RAISE AWARENESS FOR MILLIONS OF CHILDREN LIVING WITH RARE DISEASE
Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness

February 1, 2010 - Hope - It's In Our Genes.!" The Children's Rare Disease Network today announced the Global Genes Project, an initiative designed to raise awareness about the prevalence of rare diseases that afflict millions of children worldwide. » Read more

To become a part of the Global Genes Project, please contact CORD for more information.

Canada's "Chance for Life" Strategy
Canadians with rare disorders need timely access to innovative therapies. Many of these represent the only effective therapy for severe, life-threatening disorders. » More info

Position Paper on Canada's Orphan Drug Policy
Canadians suffering from rare debilitating or life threatening diseases need an Orphan Drug Policy that will assure Canadians with rare diseases have timely affordable access to the best therapies and provide competitive incentives for Canadian-based companies. » More info

Private Members Motion (M-426)
On May 17, the House of Commons passed a Private Members Motion (M-426) on Rare Diseases. MP Don Bell from North Vancouver worked with members of all parties to gain support for this initiative. » More info

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Visit CORD's new FACEBOOK fan page! Keep up-to-date on CORD's upcoming events and news. Meet friends, share stories, find support, and build a network.
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