- Orphanet: Provides information on rare diseases and orphan drugs
- NORD Rare Disease Support Community: Connects patients, families, friends and caregivers for support and inspiration
- Pleural Mesothelioma: A rare cancer that is mainly caused by asbestos exposure. Free informational books, packets, and a Patient Advocacy program and support groups.
- Rare Disease Foundation: RDF’s goal is to change the lives of children and families affected by rare and undiagnosed diseases through social support, advocacy and treatment-focused research
- Rare Disease Information and Resource Centre: Information on rare diseases (Quebec/Canada), resources and support
- RareShare: A unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders