News

CORD President & CEO Durhane Wong-Rieger appointed to Implementation Advisory Group for drugs for rare diseases

Government of Canada establishes Advisory Group to help Canadians living with rare diseases.

Link to Press Release: https://www.canada.ca/en/health-canada/news/2023/10/government-of-canada-establishes-advisory-group-to-help-canadians-living-with-rare-diseases.html?fbclid=IwAR3fnlwZKkj_3vpr2a8Y6yIYrJN-w2EOYiWunB1zb8F3o57Q4xiv-7it2ew

Implementation Advisory Group (IAG) for the National Strategy for Drugs for Rare Diseases: https://www.canada.ca/en/health-canada/services/prescription-drug-system/implementation-advisory-group-national-strategy-drugs-rare-diseases.html

Investments to Support Access to Drugs for Rare Diseases: https://www.canada.ca/en/health-canada/news/2023/03/investments-to-support-access-to-drugs-for-rare-diseases.html

Building a National Strategy for Drugs for Rare Diseases: What We Heard from Canadians: https://www.canada.ca/en/health-canada/programs/consultation-national-strategy-high-cost-drugs-rare-diseases-online-engagement/what-we-heard.html

Prescription drug insurance coverage: https://www.canada.ca/en/health-canada/services/health-care-system/pharmaceuticals/access-insurance-coverage-prescription-medicines.html

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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Event

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.

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Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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