Past Events
CORD annual Fall Conference
Date: Nov 29-30, 2023
Location: Delta Calgary Downtown
Agenda
Slides
Applying Artificial Intelligence to Accelerate Rare Disease Diagnosis
Date: Oct 25, 2023
Webinar Video
Investing $1.5b in A Sustainable Rare Disease Ecosystem
Date: June 21, 2023
Webinar Video
Webinar Slides
CORD/RQMO – Rare Disease Drug Strategy Webinar
Date: June 9, 2023
English Slides
English Webinar Video
French Slides
French Webinar Video
Rare Disease Day Conference
Date: March 28 – 29, 2023
Location: Ottawa Marriott, 100 Kent Street, Ottawa
Agenda
Action Day on Parliament Hill
Facebook Post
Rare Disease Day 2023 Breakfast Reception at Queen’s Park
Photo Album
Rare Disease 2022 Fall Conference
Planning for Proof-of-Concept Programs to Transform Vision to Reality
Date: Nov 21 – 22, 2022
Location: Hyatt Regency Toronto
Agenda
Conference slides & videos
Building Canada’s Smart Rare Disease and Rare Drug System Conference
Date: June 8 – 9, 2022
Location: Ottawa Marriott Hotel
Agenda
Conference Slides
Day 1 Video
Day 2 Video
CORD Smart Planning Webinars Series
Leave No One Behind
Date: May 19, 2022
Webinar Video
Webinar Slides
Rare Disease Centres of Excellence
Date: May 5, 2022
Webinar Video
Webinar Slides Part 1
Webinar Slides Part 2
Rare Disease Patient Registries: Key to Drug Development and Access
Date: May 3, 2022
Webinar Video
Webinar Slides
Lessons for a SMART Rare Drug System
Date: April 26, 2022
Webinar Video
Webinar Slides
Application of RWE in Drug Access Decision Making
Date: April 19, 2022
Webinar Video
Webinar Slides
Rare Disease Day Webinar
Date: February 24, 2022
Webinar Video
Webinar Slides
CORD Fall 2021 Conference
Date: December 1 & 2, 2021
Agenda
Day 1 Video
Day 2 Video
Day 1 Slides
Day 2 Slides
Webinar: Learnings and Unresolved Issues Webinar
Date: November 1, 2021
Webinar Video
Webinar Slides
RWD/RWE for Rare Disease Drugs Webinar
Date: September 22, 2021
Webinar Video
Webinar Slides
CORD Summer 2021 Webinars
Refocus PMPRB “Back to the Future”: Part One.
Date: August 19, 2021
Webinar Video
Webinar Slides
Webinar 2: Engaging Political Parties, Politicians, and Policy Makers on Patient Needs
Date: July 29, 2021
Webinar 2 Video
Webinar 2 Slides
Webinar 1: Aligning on Rare Drug Strategy, PMPRB, and Federal Election
Date: July 22, 2021
Webinar 1 Video
Webinar 1 Slides
CORD Rare Drug Strategy Implementation Webinars
Webinar 4: Why Invest in Rare Disease Infrastructure
Date: June 17, 2021
Webinar 4 Video
Webinar 4 Slides
Webinar 3: Bringing Home the 5% Solution
Date: June 10, 2021
Webinar 3 Video
Webinar 3 Slides
Webinar 2: Matching Access to Risk
Date: May 27, 2021
Webinar 2 Video
Webinar 2 Slides
Webinar 1: Every 18 Minutes
Date: May 20, 2021
Webinar 1 Video
Rare Disease Day 2021 Conference
Date: March 9 -10, 2021
Agenda
Video Day 1
Video Day 2
Rare Disease Day Celebration Webinar
Date: February 26, 2021
Webinar Video
Designing Pan-Canadian Rare Drug Framework Webinars
Webinar 9: Everything you Need to Know to Respond to Canada’s Discussion Guide to “Building a National Strategy for High-Cost Drugs for Rare Diseases
Date: February 18, 2021
Webinar 9 Slides
Webinar 8: Laying A Factual Foundation for Canada’s Rare Drug Program
Date: February 12, 2021
Webinar 8 Video
Webinar 8 Slides
Webinar 7: How Other Countries Provide Access to Rare Disease Drugs: What Canada can Learn … or Not
Date: January 29, 2021
Webinar 7 Video
Webinar 7 Slides
Webinar 6: Crowdsourcing Key Issues on Pan-Canadian Rare Drug Program: Feedback and Advancing the Options
Date: January 15, 2021
Webinar 6 Video
Webinar 6 Slides
Designing the Blueprint for pan-Canadian Rare Drug Program
Date: December 16, 2020
Agenda
Video recording
Consultation Toward Canada’s Rare Disease Drug Strategy Webinars
Webinar 5: Innovative funding for rare therapies from generic to transformative
Date: December 4, 2020
Webinar 5 Video
Webinar 4: Streamlined rare drug processes across regulatory, HTA, and pricing agencies
Date: November 20, 2020
Webinar 4 Video
Webinar 4 Slides
Webinar 3: Addressing individualized needs for rare therapies
Date: November 6, 2020
Webinar 3 Video
Webinar 3 Slides
Webinar 2: Preventive and risk-reduction therapies: examples from rare blood disorders
Date: October 23, 2020
Webinar 2 Video
Webinar 2 Slides
Webinar 1: Time for a Canadian Orphan Drug Policy
Date: October 9, 2020
Webinar 1 Video
Webinar 1 Slides
Summer 2020 PMPRB Webinar Series
Webinar 3: Sharing and comparing feedback for the PMPRB Guidelines
Date: July 30, 2020
Webinar 3 Video
Webinar 3 Slides
Webinar 2: What we heard and what we didn’t hear at the PMPRB Public Forum
Date: July 16, 2020
Webinar 2 Video
Webinar 2 Slides
Webinar 1: Has the PMPRB removed the obstacles to access in it’s Guidelines?
Date: June 25, 2020
Webinar 1 Video Recording
Webinar 1 Slides
Spring 2020 Webinar Series
Webinar 3: Alternative Approaches to Innovative Drug Pricing
Date: May 13, 2020
Webinar 3 Video
Webinar 3 Slides
Webinar 2: Drug Launches: What Influences the Decision to Deploy New Medicines?
Date: May 6, 2020
Webinar 2 Video
Webinar 3 Slides
Webinar 1: Patients Speak Out
Date: April 29, 2020
Webinar 1 Video
Webinar 1 Slides
Rare Disease Day 2020 Conference
Date: March 9 -10, 2020
Location: Delta Hotels Ottawa City Centre
Agenda
Speaker Bios
Conference Slides
Annual Rare Disease Day 2020 Gala
Date: March 9, 2020
Rare Disease Day 2020 Award Winners
Photo Album
Access to Innovation Opportunities for Cell & Gene Therapies Conference 2019
Date: November 18-19, 2019
Location: Sheraton Centre Toronto
Final Agenda
Speakers Bios
Presentations
Photo Album
CORD-RDI “A Rare International Dialogue”
Date: May 10-12, 2019
Location: Sheraton Centre Toronto
Final Agenda
Speakers Bios
Presentations
Dr. Hayden, Video Presentation
Photo Album
Rare Disease Day 2019 Awards Gala
May 10, 2019 (Sheraton Centre Toronto Hotel)
Slideshow
Photo Album
Designing A Canadian 21st Century Pharmacare to Optimize Access to 21st Century Therapies Including Drugs for Rare Diseases
Date: November 8-9, 2018
Location: Sheraton Centre Toronto
Final Agenda
Presentations
How to Ensure Patient-Centred Pharmacare is Cost-Effective Healthcare
A Consultation on Patented Medicine Prices Review Board & Biologic Medicines
Date: January 31 , 2018
Location: Marriott Toronto Downtown Eaton Centre Hotel
Final Agenda
Presentations
CORD 2017 Fall Conference: A Moon Shot for Rare Disorders: Leave No one Behind
Date: November 6 – 7, 2017
Location: Hyatt Regency Toronto, 370 King St W, Toronto, Ontario
Final Agenda
Presentations
Getting Patients to OHIP+ Addressing Issues to a Smooth Transition
Date: November 17, 2017
Roadmap to Optimal Drug Access
Date: June 14, 2017
Location: Delta Hotel Toronto
Final Agenda
Presentations
Session Report
Rare Disease Day 2017 Conference
Conference: March 30 – 31, 2017
Location: Sheraton Vancouver Wall Centre
Final Agenda
Presentations
GETTING TO ACCESS Innovative approaches to innovative medicines
Date: March 29, 2017
Location: Sheraton Vancouver Wall Centre
Final Agenda
Presentations
Wake UP TO Rare Disease Day in Ontario!
Date: February 28, 2017
Location: Queen’s Park, Toronto
Invitation
Canadian Expert Patients in Health Technology Conference
Date: November 7 – 8, 2016
Location: Hyatt Regency Toronto, 370 King St W, Toronto, Ontario
Agenda
Presentations
Access to BIOSIMILARS in Canada
Dialogue with Canada’s leading regulatory and assessment experts: Health Canada Bureau of Biologics and Genetic Therapies (BGTD) and Canadian Agency for Drugs and Technologies in Health (CADTH)
Date: June 29, 2016
Location: Ottawa & Webinar
Webinar Full Recording
Presentation
UP Close and Personal with pCPA
Join us for a dialogue with pCPA (panCanadian Pharmaceutical Alliance)
Date: June 22, 2016
Location: Toronto & Webinar
pCPA Presentation
CORD Presentation
Rare Disease Day 2016 Conference
Date: March 9 – 10, 2016
Location: Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, Ontario
Agenda
Presentations
Rare Disease Day Gala 2016
Date: March 9 – 10, 2016
Location: Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, Ontario
2016 Rare Disease Rarity Heroes Awards Winners
Photo Album
Canada’s Rare Disease Strategy Cross-Country Awareness-Building Tour
CORD partnered with the Economic Club of Canada (ECC) to present Canada’s Rare Disease Strategy
Toronto: Thursday, September 24, 2015 (Toronto Marriott Downtown Eaton Centre Hotel)
Edmonton: Wednesday, October 7, 2015 (Westin Hotel)
Ottawa: Monday, November 9, 2015 (Fairmont Chateau Laurier)
Montreal: Tuesday, November 24, 2015 (Fairmont The Queen Elizabeth)
Vancouver: Tuesday January 19, 2016 (Fairmont Pacific Rim)
Pituitary Tumour Network Canada Patient Workshop
Date: November 21, 2015
Location: Hyatt Regency Toronto: 370 King St. W., Toronto, Ontario
Agenda
Dr. Chik presentation
Dr. Imran presentation
Expert Patient Advocates & 21st Century Therapies Forum
Date: November 19 – 20, 2015
Location: Hyatt Regency Toronto: 370 King St. W., Toronto, Ontario
Agenda
Presentations
Rare Finds Toronto: Indulge…and Do Good!
Date: November 19, 2015
Location: The Burroughes, 639 Queen St. W, Toronto, Ontario
Photo Album