Past Events

Past Events

CORD annual Fall Conference
Date: Nov 29-30, 2023
Location: Delta Calgary Downtown
Agenda
Slides

Applying Artificial Intelligence to Accelerate Rare Disease Diagnosis
Date: Oct 25, 2023
Webinar Video

Investing $1.5b in A Sustainable Rare Disease Ecosystem
Date: June 21, 2023
Webinar Video
Webinar Slides

CORD/RQMO – Rare Disease Drug Strategy Webinar
Date: June 9, 2023
English Slides
English Webinar Video
French Slides
French Webinar Video

Rare Disease Day Conference
Date: March 28 – 29, 2023
Location: Ottawa Marriott, 100 Kent Street, Ottawa
Agenda

Action Day on Parliament Hill
Facebook Post

Rare Disease Day 2023 Breakfast Reception at Queen’s Park
Photo Album

Rare Disease 2022 Fall Conference
Planning for Proof-of-Concept Programs to Transform Vision to Reality
Date: Nov 21 – 22, 2022
Location: Hyatt Regency Toronto
Agenda
Conference slides & videos

Building Canada’s Smart Rare Disease and Rare Drug System Conference
Date: June 8 – 9, 2022
Location: Ottawa Marriott Hotel
Agenda
Conference Slides
Day 1 Video 
Day 2 Video

CORD Smart Planning Webinars Series 

Leave No One Behind
Date: May 19, 2022
Webinar Video
Webinar Slides

Rare Disease Centres of Excellence
Date: May 5, 2022
Webinar Video
Webinar Slides Part 1
Webinar Slides Part 2

Rare Disease Patient Registries: Key to Drug Development and Access
Date: May 3, 2022
Webinar Video
Webinar Slides

Lessons for a SMART Rare Drug System
Date: April 26, 2022
Webinar Video
Webinar Slides

Application of RWE in Drug Access Decision Making
Date: April 19, 2022
Webinar Video
Webinar Slides

Rare Disease Day Webinar
Date: February 24, 2022
Webinar Video
Webinar Slides 

CORD Fall 2021 Conference
Date: December 1 & 2, 2021 
Agenda
Day 1 Video
Day 2 Video
Day 1 Slides
Day 2 Slides

Webinar: Learnings and Unresolved Issues Webinar
Date: November 1, 2021
Webinar Video
Webinar Slides

RWD/RWE for Rare Disease Drugs Webinar 
Date: September 22, 2021
Webinar Video
Webinar Slides 

CORD Summer 2021 Webinars

Refocus PMPRB “Back to the Future”: Part One.
Date: August 19, 2021
Webinar Video
Webinar Slides

Webinar 2: Engaging Political Parties, Politicians, and Policy Makers on Patient Needs
Date: July 29, 2021
Webinar 2 Video
Webinar 2 Slides

Webinar 1: Aligning on Rare Drug Strategy, PMPRB, and Federal Election
Date: July 22, 2021
Webinar 1 Video
Webinar 1 Slides

CORD Rare Drug Strategy Implementation Webinars

Webinar 4: Why Invest in Rare Disease Infrastructure
Date: June 17, 2021
Webinar 4 Video
Webinar 4 Slides

Webinar 3: Bringing Home the 5% Solution
Date: June 10, 2021
Webinar 3 Video 
Webinar 3 Slides

Webinar 2: Matching Access to Risk
Date: May 27, 2021
Webinar 2 Video
Webinar 2 Slides

Webinar 1: Every 18 Minutes
Date: May 20, 2021
Webinar 1 Video

Rare Disease Day 2021 Conference  
Date: March 9 -10, 2021
Agenda
Video Day 1
Video Day 2

Rare Disease Day Celebration Webinar
Date: February 26, 2021
Webinar Video

Designing Pan-Canadian Rare Drug Framework Webinars

Webinar 9: Everything you Need to Know to Respond to Canada’s Discussion Guide to “Building a National Strategy for High-Cost Drugs for Rare Diseases
Date: February 18, 2021
Webinar 9 Slides

Webinar 8: Laying A Factual Foundation for Canada’s Rare Drug Program
Date: February 12, 2021
Webinar 8 Video
Webinar 8 Slides

Webinar 7: How Other Countries Provide Access to Rare Disease Drugs: What Canada can Learn … or Not
Date: January 29, 2021
Webinar 7 Video
Webinar 7 Slides

Webinar 6: Crowdsourcing Key Issues on Pan-Canadian Rare Drug Program: Feedback and Advancing the Options
Date: January 15, 2021
Webinar 6 Video
Webinar 6 Slides

Designing the Blueprint for pan-Canadian Rare Drug Program 
Date: December 16, 2020
Agenda
Video recording

Consultation Toward Canada’s Rare Disease Drug Strategy Webinars

Webinar 5: Innovative funding for rare therapies from generic to transformative 
Date: December 4, 2020
Webinar 5 Video

Webinar 4: Streamlined rare drug processes across regulatory, HTA, and pricing agencies
Date: November 20, 2020
Webinar 4 Video
Webinar 4 Slides 

Webinar 3: Addressing individualized needs for rare therapies
Date: November 6, 2020 
Webinar 3 Video
Webinar 3 Slides

Webinar 2: Preventive and risk-reduction therapies: examples from rare blood disorders
Date: October 23, 2020
Webinar 2 Video
Webinar 2 Slides

Webinar 1: Time for a Canadian Orphan Drug Policy
Date: October 9, 2020
Webinar 1 Video
Webinar 1 Slides

Summer 2020 PMPRB Webinar Series

Webinar 3: Sharing and comparing feedback for the PMPRB Guidelines
Date: July 30, 2020
Webinar 3 Video 
Webinar 3 Slides

Webinar 2:
What we heard and what we didn’t hear at the PMPRB Public Forum
Date: July 16, 2020
Webinar 2 Video 
Webinar 2 Slides

Webinar 1: Has the PMPRB removed the obstacles to access in it’s Guidelines?
Date: June 25, 2020
Webinar 1 Video Recording
Webinar 1 Slides

Spring 2020 Webinar Series

Webinar 3: Alternative Approaches to Innovative Drug Pricing 
Date: May 13, 2020
Webinar 3 Video
Webinar 3 Slides

Webinar 2: Drug Launches: What Influences the Decision to Deploy New Medicines?
Date: May 6, 2020
Webinar 2 Video
Webinar 3 Slides

Webinar 1: Patients Speak Out
Date: April 29, 2020
Webinar 1 Video 
Webinar 1 Slides 

Rare Disease Day 2020 Conference
Date: March 9 -10, 2020
Location: Delta Hotels Ottawa City Centre
Agenda
Speaker Bios
Conference Slides 

Annual Rare Disease Day 2020 Gala
Date: March 9, 2020
Rare Disease Day 2020 Award Winners
Photo Album

Access to Innovation Opportunities for Cell & Gene Therapies Conference 2019
Date: November  18-19, 2019
Location: Sheraton Centre Toronto
Final Agenda
Speakers Bios
Presentations
Photo Album

CORD-RDI “A Rare International Dialogue”
Date: May  10-12, 2019
Location: Sheraton Centre Toronto
Final Agenda
Speakers Bios
Presentations
Dr. Hayden, Video Presentation
Photo Album 

Rare Disease Day 2019 Awards Gala
May 10,  2019 (Sheraton Centre Toronto Hotel)
Slideshow
Photo Album

Designing A Canadian 21st Century Pharmacare to Optimize Access to 21st Century Therapies Including Drugs for Rare Diseases
Date:  November 8-9, 2018
Location: Sheraton Centre Toronto
Final Agenda
Presentations

How to Ensure Patient-Centred Pharmacare is Cost-Effective Healthcare
A Consultation on Patented Medicine Prices Review Board & Biologic Medicines
Date: January 31 , 2018
Location: Marriott Toronto Downtown Eaton Centre Hotel
Final Agenda
Presentations

CORD 2017 Fall Conference: A Moon Shot for Rare Disorders: Leave No one Behind
Date: November 6 – 7, 2017
Location: Hyatt Regency Toronto, 370 King St W, Toronto, Ontario
Final Agenda
Presentations

Getting Patients to OHIP+  Addressing Issues to a Smooth Transition
Date: November 17, 2017

Roadmap to Optimal Drug Access
Date: June 14, 2017
Location: Delta Hotel Toronto
Final Agenda
Presentations
Session Report

Rare Disease Day 2017 Conference
Conference: March 30 – 31, 2017
Location: Sheraton Vancouver Wall Centre
Final Agenda
Presentations

GETTING TO ACCESS Innovative approaches to innovative medicines
Date: March 29, 2017
Location: Sheraton Vancouver Wall Centre
Final Agenda
Presentations

Wake UP TO Rare Disease Day in Ontario!
Date: February 28, 2017
Location: Queen’s Park, Toronto
Invitation

Canadian Expert Patients in Health Technology Conference
Date: November 7 – 8, 2016
Location: Hyatt Regency Toronto, 370 King St W, Toronto, Ontario
Agenda
Presentations

Access to BIOSIMILARS in Canada
Dialogue with Canada’s leading regulatory and assessment experts: Health Canada Bureau of Biologics and Genetic Therapies (BGTD) and Canadian Agency for Drugs and Technologies in Health (CADTH)
Date: June 29, 2016
Location: Ottawa & Webinar
Webinar Full Recording
Presentation

UP Close and Personal with pCPA
Join us for a dialogue with pCPA (panCanadian Pharmaceutical Alliance)
Date: June 22, 2016
Location: Toronto & Webinar
pCPA Presentation
CORD Presentation 

Rare Disease Day 2016 Conference
Date: March 9 – 10, 2016
Location: Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, Ontario
Agenda
Presentations 

Rare Disease Day Gala 2016
Date: March 9 – 10, 2016
Location: Sheraton Ottawa Hotel: 150 Albert Street, Ottawa, Ontario
2016 Rare Disease Rarity Heroes Awards Winners
Photo Album

Canada’s Rare Disease Strategy Cross-Country Awareness-Building Tour
CORD partnered  with the Economic Club of Canada (ECC) to present Canada’s Rare Disease Strategy
Toronto: Thursday,  September 24, 2015 (Toronto Marriott Downtown Eaton Centre Hotel)
Edmonton: Wednesday, October 7, 2015 (Westin Hotel)
Ottawa: Monday, November 9, 2015 (Fairmont Chateau Laurier)
Montreal: Tuesday, November 24, 2015  (Fairmont The Queen Elizabeth)
Vancouver: Tuesday January 19, 2016 (Fairmont Pacific Rim)

Pituitary Tumour Network Canada Patient Workshop
Date: November 21, 2015
Location: Hyatt Regency Toronto: 370 King St. W., Toronto, Ontario
Agenda
Dr. Chik presentation
Dr. Imran presentation

Expert Patient Advocates & 21st Century Therapies Forum
Date: November 19 – 20, 2015
Location: Hyatt Regency Toronto: 370 King St. W., Toronto, Ontario
Agenda
Presentations 

Rare Finds Toronto: Indulge…and Do Good!
Date: November 19, 2015
Location: The Burroughes, 639 Queen St. W, Toronto, Ontario
Photo Album 

OHIP+ Info Session