Affiliate Members

Affiliate Members

Listed below are our affiliate / group members. Corporate members are listed in Corporate Leaders.

  • Acoustic Neuroma Association of Canada
  • aHUS Canada
  • AKU Society
  • Alpha-1 Canada
  • Angioma Alliance Canada
  • Answering TTP Foundation
  • Aplastic Anemia Myleodysplasia Association of Canada
  • Association des Patients Immunodéficients du Québec
  • Atlantic Acromegaly Support Society
  • Barth Syndrome Foundation of Canada
  • Behcet’s Disease Canada
  • Bethany’s Hope Foundation
  • Canadian Amyloidisis Support Network
  • Canadian Association for Alternating Hemiplegia
  • Canadian Association for Porphyria/Association Canadienne de Porphyrie
  • Canadian Association of Pompe
  • Canadian FOP Network
  • Canadian Chiari Association
  • Canadian Fabry Association
  • Canadian Fanconi Anemia Research Fund
  • Canadian Hemophilia Society
  • Canadian Immunodeficiencies Patient Organization (CIPO)
  • Canadian MPN Network
  • Canadian MPS Society
  • Canadian Neuropathy Association
  • Canadian PBC Society
  • Canadian Pemphigus and Pemphigoid Foundation
  • Canadian Pulmonary Fibrosis Foundation
  • Canadian Skin Patient Alliance
  • Carcinoid NeuroEndocrine Tumour Society Canada
  • Cassie and Friends Society for Children with Juvenile Arthritis
  • CDKL5 Canada
  • Choroideremia Research Foundation of Canada
  • Chronic Lymphocytic Leukemia Patient Advocacy Group
  • CIHR Institute of Genetics / Orphanet-Canada
  • Council For Bile Acid Deficiency Diseases
  • Cystic Fibrosis Canada
  • DEBRA Canada
  • Dravet.ca
  • Dystonia Medical Research Foundation Canada
  • Ehlers-Danlos Syndrome Canada
  • Encephalitis Global Inc
  • Foundation for Prader-Willi Research Canada
  • Galactosemia Canada
  • GBS/CIDP Foundation of Canada
  • GIST Sarcoma Life Raft Group Canada
  • GNE Myopathy Support Group
  • HAE Canada
  • Huntington Society of Canada
  • iBellieve Foundation
  • Indian Organization for Rare Diseases
  • Jesse’s Journey
  • Jewish General Hospital, Institute of Community and Family Psychiatry
  • Joubert Syndrome & Related Disorders Foundation
  • Kidney Cancer Canada
  • Medical Cannabis Access Society
  • MitoCanada Foundation
  • MPN Ontario Patient Support Group
  • Muscular Dystrophy Canada
  • Myeloma Canada
  • National Gaucher Foundation of Canada
  • Network of Rare Blood Disorder Organizations (NRBDO)
  • Neuroblastoma Canada
  • Neurofibromatosis Society of Ontario
  • Ontario Rett Syndrome Association
  • PANDAS/PANS Ontartio
  • Polycystic Kidney Disease Foundation of Canada
  • Pulmonary Hypertension Association of Canada
  • PVNH Support & Awareness
  • Rare Disease Foundation
  • Regroupement québécois des maladies orphelines (RQMO)
  • Scleroderma Society of Canada
  • Shwachman-Diamond Syndrome Canada
  • Sickle Cell Disease Association of Canada
  • Soft Bones Canada
  • SUDEP Aware
  • Tarlov Cyst Society of Canada
  • The Anti-NMDA Receptor Encephalitis Foundation
  • The Canadian Addison Society
  • The Canadian CML Network
  • The Foundation Fighting Blindness
  • The Hospital for Sick Children
  • The Oley Foundation
  • Tuberous Sclerosis Canada Sclérose Tubéreuse (TSCST)
  • Turner Syndrome Society of Canada
  • Vancouver Acromegaly Support Group
  • Vasculitis Foundation Canada
  • VHL Canada