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CORD is Canada's national network for organizations representing all those with rare disorders.

Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.

About CORD
fight for our lives

Latest News

CORD's pre-budget submission

CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.

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CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement

We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.

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CORD’s Submission to the House of Commons Standing Committee of Health

CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.

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Call for Nominations for CORD Board of Directors 2024-2027

The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.

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New patient registries will improve health care and outcomes for children and families living with rare diseases

Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.

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Upcoming Events

Fall 2024 Rare Disease Conference poster

Fall 2024 Rare Disease Conference

We are very excited to announce that the CORD 2024 Fall Conference will be held in Montréal collaboration with Regroupement québécois des maladies orphelines (RQMO).

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Please make a contribution to help improve the lives of all Canadians with rare disorders

The Canadian Organization for Rare Disorders is dedicated to honouring our commitment to our donors and to Canadians suffering from rare disorders by funding much-needed advocacy, education and research.

Because CORD is a volunteer-based organization, we know how to do a lot with very modest budgets. However, we still need your financial contribution to help us do our work. Even a small gift means a lot.

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Join us and become part of an active Canadian rare disorder community

CORD is a national organization comprised of patient groups representing individuals and families affected by rare disorders. CORD provides programs, resources, and a common voice to advocate for health policy and a healthcare system that works for all Canadians affected by rare disorders.

Become a Member

Rare Disease Day

February 28, 2025

Rare Disease Day is to raise awareness amongst the general public and decision makers about rare diseases and their impact on patients' lives.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

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