
'We know of no drug process that is as opaque as the B.C. government's. We have no idea who the members of the committee are, as their committee meetings are held in secrecy' — Durhane Wong-Rieger, CEO of the Canadian Organization for Rare Disorders and chair of Rare Diseases International
Vancouver Sun article by Alec Lazenby, published July 22, 2025
Title: Advocate calls for changes to B.C. fund for drugs treating rare diseases
Read the full article: https://vancouversun.com/news/local-news/advocate-calls-for-changes-bc-fund-drugs-rare-diseases-charleigh-pollock