Past Events

Webinar 2: When Innovation Rewrites the Pathway

Oct 16, 2026

From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies - so that screening, diagnosis, eligibility, expertise, delivery, patient choice, monitoring and learning do not have to be rebuilt after each access decision?

Speakers: Kim Steele, Cystic Fibrosis Canada 
Susi Vander Wyk, Cure SMA Canada
Audrey Belouin, Canadian Association of Pompe 

Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways

Sep 29, 2026

Webinar 4: From Readiness to Action

Aug 11, 2026

Webinar 3: Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?

Jul 28, 2026

Webinar 2: The Cost of Waiting: The Socioeconomic Impact of Rare Disease in Canada

Jul 14, 2026

Webinar 1: From Genomic Testing Readiness to Rare Disease System Readiness

Jun 23, 2026

Join us for Webinar 1, featuring Don Husereau (University of Ottawa) and Durhane Wong-Rieger (CORD) as they discuss the transition from genomic testing readiness to rare disease system readiness, and explore how to shape the next phase of Canada’s Rare Disease Strategy.

Rare Disease Day 2026 Conference

April 29-30, 2026 / Toronto

Rare Disease Day: Pre-Conference Hands-On Workshop (Outcomes-Based Agreements, Managed Access & Real-World Evidence)

Apr 28, 2026 / Toronto

Rare Disease Day 2026: Canadian Rare Disease Day Lightings #LightUpForRare

February 26 - 28

Rare Disease Day 2026 Webinar

Feb 27, 2026

CORD Fall Rare Disease Conference 2025

November 25-26 / Ottawa

Webinar: Canadian Survey on the Impact of Disease

May 9, 2025