News

Canadian Organization for Rare Disorders calls on Canada’s Premiers to invest in comprehensive rare disease programs by using $1.4 billion federal funding for more than drugs  

Jul 10, 2025 / Press Release

BC Ministry “Terminates” Life-Sustaining Treatment for Rare Disease Child: CORD Calls for Immediate Reversal

Jul 7, 2025 / News

The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting

Jul 4, 2025 / News

The Canadian Organization for Rare Disorders gives notice of it’s Annual General Meeting on August 18, 2025 at 3:00 PM ET

Help Shape Rare Disease Policy in Canada – Share Your Voice by Participating in the Survey Today! Deadline Exetended

Jun 9, 2025 / News

Call for Nominations for CORD Board of Directors 2025-2028

May 15, 2025 / News

The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2025-2028 term to help guide our organization to meet the needs of the rare disease community.

CORD a préparé un guide électoral 2025 pour vous aider à passer à l’action dès maintenant!

Apr 8, 2025 / News

Letter to Federal Political Leaders: Canada’s Rare Disease Strategy is needed NOW more than ever

Jan 14, 2025 / News

CORD's pre-budget submission

Aug 8, 2024 / News

CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.

CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement

Jul 23, 2024 / News

We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.