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Canada’s $1.5-billion Rare Disease Drug Strategy generating ‘return on investment’ for patients and society but more needs to be done/La Stratégie nationale visant les médicaments pour le traitement des maladies rares de 1,5 milliard de dollars du gouvernement du Canada est rentable pour les patients et la société, mais il reste encore beaucoup à faire

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MEDIA ADVISORY / INVITATION TO PRESS CONFERENCE: Canadian Organization for Rare Disorders reports at halfway point of first three-year phase of Canada’s Rare Disease Strategy

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Advocate calls for changes to how B.C. decides to fund drugs for rare diseases

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Canadian Organization for Rare Disorders calls on Canada’s Premiers to invest in comprehensive rare disease programs by using $1.4 billion federal funding for more than drugs  

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BC Ministry “Terminates” Life-Sustaining Treatment for Rare Disease Child: CORD Calls for Immediate Reversal

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The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting

The Canadian Organization for Rare Disorders gives notice of it’s Annual General Meeting on August 18, 2025 at 3:00 PM ET

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Help Shape Rare Disease Policy in Canada – Share Your Voice by Participating in the Survey Today! Deadline Exetended

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Call for Nominations for CORD Board of Directors 2025-2028

The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2025-2028 term to help guide our organization to meet the needs of the rare disease community.

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CORD a préparé un guide électoral 2025 pour vous aider à passer à l’action dès maintenant!

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CORD has developed an election toolkit to help you take action!

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Letter to Federal Political Leaders: Canada’s Rare Disease Strategy is needed NOW more than ever

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