News

What was your “moment that mattered”?

Jun 23, 2026 / News

The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting

Jun 5, 2026 / News

The Canadian Organization for Rare Disorders gives notice of it’s Annual General Meeting on August 18, 2026 at 2:00 PM ET

Strengthening Canada’s Innovative Medicines Strategy

Jun 2, 2026 / News

Strengthening Canada’s Innovative Medicines Strategy: From Receptivity to Implementation. Follow-up reflections for the Pharmaceutical and Life Sciences Sector Task Force 

CORD Board of Directors 2026-2029

Jun 1, 2026 / News

Call for Nominations for CORD Board of Directors 2026-2029: The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2026-2029 term to help guide our organization to meet the needs of the rare disease community.

Canada’s $1.5-billion Rare Disease Drug Strategy generating ‘return on investment’ for patients and society but more needs to be done/La Stratégie nationale visant les médicaments pour le traitement des maladies rares de 1,5 milliard de dollars du gouvernement du Canada est rentable pour les patients et la société, mais il reste encore beaucoup à faire

Nov 25, 2025 / Press Release

MEDIA ADVISORY / INVITATION TO PRESS CONFERENCE: Canadian Organization for Rare Disorders reports at halfway point of first three-year phase of Canada’s Rare Disease Strategy

Nov 24, 2025 / News

Advocate calls for changes to how B.C. decides to fund drugs for rare diseases

Jul 22, 2025 / News