News | Canadian Organization for Rare Disorders

CORD a préparé un guide électoral 2025 pour vous aider à passer à l’action dès maintenant!

Apr 8, 2025 / News

CORD has developed an election toolkit to help you take action!

Apr 3, 2025 / News

Letter to Federal Political Leaders: Canada’s Rare Disease Strategy is needed NOW more than ever

Jan 14, 2025 / News

CORD's pre-budget submission

Aug 8, 2024 / News

CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.

CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement

Jul 23, 2024 / News

We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.

CORD’s Submission to the House of Commons Standing Committee of Health

May 23, 2024 / News

CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.

Call for Nominations for CORD Board of Directors 2024-2027

May 15, 2024 / News

The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.

New patient registries will improve health care and outcomes for children and families living with rare diseases

May 10, 2024 / News

Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.