Renew and expand the National Strategy for Drugs for Rare Diseases

Jul 21, 2026 / News

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Rare Disease Readiness Survey

Jul 14, 2026 / News

CORD is inviting members of the rare disease community in Canada, including patients, caregivers, clinicians, researchers, patient organizations, policy partners, and health-system leaders, to participate in the Rare Disease Readiness Survey.

What was your “moment that mattered”?

Jun 23, 2026 / News

We're inviting patients, caregivers, family members, and advocates to share one key moment from their experience.

Share your story and help improve diagnosis, care, and support for others.

The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting

Jun 5, 2026 / News

The Canadian Organization for Rare Disorders hereby gives notice of its Annual General Meeting, to be held on August 18, 2026, at 3:00 p.m. ET (updated meeting time).

Strengthening Canada’s Innovative Medicines Strategy

Jun 2, 2026 / News

Strengthening Canada’s Innovative Medicines Strategy: From Receptivity to Implementation. Follow-up reflections for the Pharmaceutical and Life Sciences Sector Task Force

CORD Board of Directors 2026-2029

Jun 1, 2026 / News

Call for Nominations for CORD Board of Directors 2026-2029: The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2026-2029 term to help guide our organization to meet the needs of the rare disease community.