Lifileucel Ontario case: why it matters beyond melanoma
Sep 29, 2026 / News
CORD has prepared a short summary of the case and its relevance to rare disease and rare therapeutic populations, including parallels with Yescarta and other advanced therapies.
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CORD Rare Disease Readiness Action Group: Call for Expressions of Interest
Aug 20, 2026 / News
CORD is inviting expressions of interest for a new Rare Disease Readiness Action Group to help move Canada's rare disease agenda from identifying priorities to assessing what actually works for patients—and what needs to change.
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Rare Disease Readiness Survey
Jul 14, 2026 / News
CORD is inviting members of the rare disease community in Canada, including patients, caregivers, clinicians, researchers, patient organizations, policy partners, and health-system leaders, to participate in the Rare Disease Readiness Survey.
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What was your “moment that mattered”?
Jun 23, 2026 / News
We're inviting patients, caregivers, family members, and advocates to share one key moment from their experience.
Share your story and help improve diagnosis, care, and support for others.
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The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting
Jun 5, 2026 / News
The Canadian Organization for Rare Disorders hereby gives notice of its Annual General Meeting, to be held on August 18, 2026, at 3:00 p.m. ET (updated meeting time).
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