CORD is inviting members of the rare disease community in Canada, including patients, caregivers, clinicians, researchers, patient organizations, policy partners, and health-system leaders, to participate in the Rare Disease Readiness Survey.
This survey will help identify where patients and families get stuck, which readiness gaps matter most, what supports are missing, how diagnosis, treatment, care coordination, data, and equity should be assessed, and what practical actions could improve rare disease care over the next 12–18 months