Canada’s $1.5-billion Rare Disease Drug Strategy generating ‘return on investment’ for patients and society but more needs to be done/La Stratégie nationale visant les médicaments pour le traitement des maladies rares de 1,5 milliard de dollars du gouvernement du Canada est rentable pour les patients et la société, mais il reste encore beaucoup à faire
Nov 25, 2025 / Press Release
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Advocate calls for changes to how B.C. decides to fund drugs for rare diseases
Jul 22, 2025 / News
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Canadian Organization for Rare Disorders calls on Canada’s Premiers to invest in comprehensive rare disease programs by using $1.4 billion federal funding for more than drugs
Jul 10, 2025 / Press Release
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BC Ministry “Terminates” Life-Sustaining Treatment for Rare Disease Child: CORD Calls for Immediate Reversal
Jul 7, 2025 / News
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The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting
Jul 4, 2025 / News
The Canadian Organization for Rare Disorders gives notice of it’s Annual General Meeting on August 18, 2025 at 3:00 PM ET
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