2016 Rare Disease Rarity Heroes Awards Winners
Rare Disease Leadership Award
This award is presented to an individual who has demonstrated outstanding leadership in the rare disease community.
Presented to: Barbara Sabourin
Rare Disease Leadership Award
This award is presented to an individual who has demonstrated outstanding leadership in the rare disease community.
Presented to: Christine Elliott
Policy Leadership Award
This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.
Presented to: Hon. Carolyn Bennett
Policy Leadership Award
This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.
Presented to: Hon. Rona Ambrose
Policy Leadership Award
This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.
Presented to: Hon. Kirsty Duncan
Volunteer Award
This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.
Presented to: John Adams
Scientific Leadership Award
This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.
Presented to: Dr. Sylvia Stockler
Scientific Leadership Award
This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.
Presented to: Dr. Clara van Karnebeek
Youth Leadership Award
This award is given to celebrate and recognize the contributions and achievements of young people in the rare disease community and impact in shaping the future.
Presented to: Jonathan Pitre
Patient Organization Award
This award is presented to a CORD Affiliate Member group making outstanding contribution in patient support or advocacy.
Presented to: aHUS Canada
Event
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
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