📢 Attention Rare Disease Community:
On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our #FightForOurLivesadvocacy (which calls on decision-makers to released promised funding for rare disease treatments), we are organizing a march on Parliament Hill.
The goal is to make some noise and let leaders in Ottawa know that they need to release promised funding for rare disease treatments without delay!!
If you’re in the Ottawa area (or planning to travel) and would like to join us for our march on Parliament Hill, here are the details:
We hope to see you there! If you can’t make it out to the march, but want to help, please follow the conversation on social media (#FightForOurLives) and amplify our message by liking and retweeting posts from the Canadian Organization for Rare Disorders (InX.com @raredisorders, Facebook @RareDisorders) Instagram @raredisorders_cord) and importantly – sharing our “take action” campaign through www.fightforourlives.ca
Let’s unite as a community and show Canadian governments that our lives matter!
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
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