Canadian Organization for Rare Disorders supports call on United Nations member states to turn universal health coverage into a reality for people living with rare diseases
Canadian Organization for Rare Disorders Submission to 2024 FINA Pre-Budget Consultations August 4, 2023
Attention Canadians with #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP Chris Lewis to make it happen.
CORD wants to express a huge thank you to the Espanola Lions Club and Kelsey McKechnie for their fundraising efforts and generous donation
2023 Rare Disease Day Conference Slides & Videos
TORONTO, March 22, 2023 - CORD was extremely pleased to be part of the federal government's announcement today of the plan to provide up to $1.5 billion over three years to implement the Rare Disease Drug Strategy
Donation from the Bayshore Foundation On behalf of everyone at the Canadian Organization for Rare Disorders (CORD), we want to express our thanks to the Bayshore Foundation & Bayshore Specialty Rx for their donation of $10,000.
Thinking about starting up a patient group? Check out CORD’s collection of online resources!
EXPERIENCES OF RARE DISEASE PATIENTS SURVEY: CANADIAN ORGANIZATION FOR RARE DISORDERS Full Report February 2023
Canadians with rare diseases do not get timely diagnosis and care – with funding and the plan in place, it’s time for political leadership. Press release for Rare Disease Day, Feb. 28, 2023
Rare Disease 2022 Fall Conference Slides & Videos
CORD submission to 2022 PMPRB Guidelines consultation: This week CORD submitted its feedback to the PMPRB in the context of its 2022 Guidelines consultation.