This week CORD submitted its feedback to the PMPRB in the context of its 2022 Guidelines consultation.
Since the PMPRB’s “so-called” reform process began in 2017, CORD has actively raised the concern that the PMPRB’s singular focus on driving medicine prices as low as possible has had and will increasingly impact the entry of new medicines into Canada, as demonstrated by the number of clinical trials and new drug submissions. This has been especially damaging to individuals living with rare diseases with progressive and life-threatening conditions for which there are few or no effective therapies.
CORD’s message to the PMPRB: “Cease and desist with these endless revisions that do not address the core need: sustainable access to the best therapies, investment in Canadian research and development of new therapies, and prices that reflect the return on investment for individuals, families, health systems, and society.”
To read our full submission, please visit https://bit.ly/3UqyvPl
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RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
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