Donation from the Bayshore Foundation
On behalf of everyone at the Canadian Organization for Rare Disorders (CORD), we want to express our thanks to the Bayshore Foundation & Bayshore Specialty Rx for their donation of $10,000.
This generous gift demonstrates the partnership with Bayshore Specialty Rx and will make a difference to Canadians living with rare diseases. It will help us continue our mission to provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders in Canada. Additionally, CORD is committed to implementing Canada’s Rare Disease Strategy which includes screening and diagnosis, access to specialists and centres of expertise, access to community support including patient organizations, timely access to treatment, research and development, including clinical trials and new technologies.
Living with a rare disease can be an isolating experience, with limited treatment options and little public awareness or understanding. With this donation, CORD can continue to advocate for Canadians affected by rare disease.
Pictured from left to right: John Lawrence, Bayshore Foundation, Sean McBride, Bayshore Specialty Rx, Hilary Wong-Rieger, CORD & Riyad Elbard, CORD Board Member
Event
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
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