Who? Patient Advocates and Patient Partner Leaders from industry and other sectors who are interested in engaging as equal partners in exploration, discovery, and creation of roles as leaders in all phases of the drug lifecycle. Limited to 30 participants.
What? This program will enhance the capabilities of patients, patient advocates, and various stakeholder groups that are involved in drug development and access to partner effectively throughout all phases of the drug lifecycle from drug development to real-world management.
Where? Virtual, 2-hour live sessions (bi-weekly) with interactive small group capabilities that will include structured opportunities comprised of expert presentations from multiple sectors and post-session discussions and written assignments.
Why? Partnering with patients has transformed how drugs are discovered, developed, and made available. We have created a structured program with interactive opportunities, expert presentations, panel discussions, case studies, simulations, and deliberate dialogues. Patient advocates and other stakeholders will engage as equal partners in exploration, discovery, and creation of roles as leaders in a variety of patient partner situations.
When? From October 2, 2020 (includes a year-end holiday break) to February 19, 2021
For more information: Patient Partners Leadership Training Overview
Registration: Spots are limited and will be accepted to ensure a variety of affiliations and perspectives. To register, please submit an application through this link.
FEES
(INCLUDING ALL ACCESS AND MATERIALS)
Regular: $3750 per participant
Government and academic affiliates: $750 per participant Patients and patient groups: $250 per participant
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
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