Corporate Responses re: Impact of COVID-19 Pandemic on Rare Disease Patients in Canada
To address concerns that we have been hearing from our members, CORD sent out a questionnaire to our corporate partners to learn how COVID-19 could affect their company’s support for rare disease patients in Canada, including supply of drugs for rare diseases and status of current or planned rare disease clinical trials. In addition, we queried about any potential increased risk of contracting COVID-19 or complications related to medications provided by their company. We appreciate the prompt response from these corporations, as listed below. We will update the list as we receive more information
Response:
Alexion
AstraZeneca
Bayer
Boehringer Ingelheim
GlaxoSmithKline
Horizon
Ipsen
Novartis
Pfizer
Janssen Canada Access and Affordability Support for Patients through the unprecedented challenge of COVID-19. Please click on their statement for more details.
Event
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
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