CORD Rare Heroes Foundation, Thanks to Estate of Peter Ness and 1st corporate contributor Illumina
Illumina is a diagnostic company that has at its heart the mission of improving human health by unlocking the power of the genome. As a company, they are dedicated to improving the path to diagnosis for families affected by genetic and rare conditions and their technology is helping to drive genetic disease testing. Every year to celebrate Rare Disease Day, Illumina chooses four rare disease advocacy organizations from around the world to support during an internal awareness and giving campaign. This year CORD has been chosen for this Illumina employee philanthropy effort.
The illumina internal campaign began February 17th and runs through Sunday, February 28th. It is focused on reaching every corner of the globe, creating a virtual chain of light where together employees can shine a light on rare disease communities. Illumina uses a platform similar to Facebook called Workplace where meetings are organized, stories are shared, patient advocacy organizations are highlighted and employees are encouraged to post photos of “the light of their lives” with the hashtag, #illuminatingraredisease. For each photo posted, a set amount is added to a grand total and divided between CORD and three other rare disease organizations. Illumina is honored to support CORD and excited about the opportunity to work together to illuminate the unique collaborations and initiatives in Canada and around the globe.
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
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