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We can have it all: affordable, timely, and best medicines for all.

Dear Health Minister,

Attached please find a copy of an open letter from Dr. Durhane Wong-Rieger on behalf of the Canadian Organization for Rare Disorders jointly to Prime Minister Trudeau and Health Minister Petitpas Taylor regarding the subject: Nobody is listening!  We call for an immediate halt to implementation of “misguided, calamitous” regulations purported to affect the pricing of medicines but effectively blocking access to important new medicines, including those for vulnerable patients with severe, life-threatening rare diseases.

Sincerely,

Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
p: 416-969-7435
m: 647-801-5176
www.raredisorders.ca

CORD letter to Prime Minister and Health Minister pdf

http://www.raredisorders.ca/cord-posts-dodge-report-on-pmprb-cost-benefit-analysis/

Dodge Report on CBA PMPRB Aug 2018.pdf

 

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Call for Nominations for CORD Board of Directors 2024-2027. CORD wishes to invite interested candidates to submit their application to join the Board of Directors

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The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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