Lisa MacLeod, MPP (Nepean-Carleton) is bringing forward a Private Members’ Motion on October 20th, to address the funding gap for patients in exceptional circumstances through the consideration of a compassionate catastrophic care fund.
The motion reads:
“That, in the opinion of this House, the Ministry of Health and Long Term Care (MOLTC) appoints an advisory committee to review jurisdictions where a process is in place to consider lifesaving experimental and high cost healthcare treatments and otherwise exceptional circumstances for patients. The MOHLTC advisory committee should consider Australia’s Special Access Scheme; New Zealand’s Exceptional Circumstances Framework and High Cost Treatment Pool and the UK’s National Health Service’s Experimental and Unproven Treatments Policy with the view to establish a compassionate catastrophic care program in Ontario for those suffering from rare disease or whose treatments may be experimental or complimentary but are not yet covered by Ontario Health Insurance Program (OHIP)”
What you can do to help:
Canadian Organization for Rare Disorders
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
T: (416) 969-7435
M: (647) 801-5176
November 6, 2017 - November 7, 2017
Hyatt Regency Toronto, 370 King St W
A Moon Shot for Rare Disorders: Leave No one Behind Objectives of Conference Create a shared understanding of the patient journey and what “good” looks like Mobilize all stakeholders around common vision for Rare Disease Canada Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needs Conference Outline Special group discounted room rate $210 before October 4, 2017 Hotel Booking: https://aws.passkey.com/e/49287903 CORD is offering travel bursaries to patient group representatives to help offset the cost of travel. Application: https://www.surveymonkey.com/r/2017cordfallconf * To receive CORD member rates you must login Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.