Support MPP MacLeod’s Private Member’s Motion on a Compassionate & Catastrophic Care Program


Lisa MacLeod, MPP (Nepean-Carleton) is bringing forward a Private Members’ Motion on October 20th, to address the funding gap for patients in exceptional circumstances through the consideration of a compassionate catastrophic care fund.

The motion reads:

“That, in the opinion of this House, the Ministry of Health and Long Term Care (MOLTC) appoints an advisory committee to review jurisdictions where a process is in place to consider lifesaving experimental and high cost healthcare treatments and otherwise exceptional circumstances for patients.  The MOHLTC advisory committee should consider Australia’s Special Access Scheme; New Zealand’s Exceptional Circumstances Framework and High Cost Treatment Pool and the UK’s National Health Service’s Experimental and Unproven Treatments Policy with the view to establish a compassionate catastrophic care program in Ontario for those suffering from rare disease or whose treatments may be experimental or complimentary but are not yet covered by Ontario Health Insurance Program (OHIP)”

What you can do to help:

  1. Send a letter to your MPP and ask them to support the motion
  2. Please RSVP to if you or anyone from your group is able to attend the press conference on Thursday, October 20 at 1 pm at the Queen’s Park Media Studio, followed by the debate in the gallery
  3. Please let us know if you or anyone from your organization would be interested in sharing their story with the press and the issues they have faced


Durhane Wong-Rieger
Canadian Organization for Rare Disorders
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
T:  (416) 969-7435
M: (647) 801-5176