Lisa MacLeod, MPP (Nepean-Carleton) is bringing forward a Private Members’ Motion on October 20th, to address the funding gap for patients in exceptional circumstances through the consideration of a compassionate catastrophic care fund.
The motion reads:
“That, in the opinion of this House, the Ministry of Health and Long Term Care (MOLTC) appoints an advisory committee to review jurisdictions where a process is in place to consider lifesaving experimental and high cost healthcare treatments and otherwise exceptional circumstances for patients. The MOHLTC advisory committee should consider Australia’s Special Access Scheme; New Zealand’s Exceptional Circumstances Framework and High Cost Treatment Pool and the UK’s National Health Service’s Experimental and Unproven Treatments Policy with the view to establish a compassionate catastrophic care program in Ontario for those suffering from rare disease or whose treatments may be experimental or complimentary but are not yet covered by Ontario Health Insurance Program (OHIP)”
What you can do to help:
Canadian Organization for Rare Disorders
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
T: (416) 969-7435
M: (647) 801-5176
June 14, 2017
Delta Hotel Toronto, 75 Lower Simcoe Street
Roadmap to Optimal Drug Access Amendments to Patented Medicines Regulations and Ontario Kids’ Pharmacare (OHIP+)DRAFT AGENDA WHAT WE WANT TO ACHIEVE Outcome: Each stakeholder to be able to provide meaningful input on Amendments to Patented Medicines Regulations benefitting from perspectives of others To that end Share expertise, knowledge, and evidence Exchange needs, interests, and concerns Deliberate toward common positions Recognize unique views In the end Expand mandate from simplistic singular focus of “protecting Canadians from excessive drug prices” to realistic collective goal of “ensuring all Canadians have access to best possible medicines at prices that are affordable today and invest in tomorrow.” * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.