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NATIONAL PHARMACARE WEBINAR DEBATES

The biggest changes in over 30 years to drug regulations and drug plans in Canada will be implemented over the next year. Will your access to prescription drugs get better … or worse? Will the Ontario Conservative government’s rollback on OHIP+ (excluding kids with private drug coverage) affect a proposed National Pharmacare program? It’s up to you! Get informed to get involved.

The Canadian Organization for Rare Disorders invites you to learn more about the options for National Pharmacare. Follow this link to our survey to share your opinions. And stay tuned to sign up for our Webinar Pharmacare Debate Series.
Link to survey: https://www.surveymonkey.com/r/PatientsTalkPharmacare

PURPOSE

Engage patients and other stakeholders in informed deliberations on key issues that must be confronted in developing a National Pharmacare Programme, including global factors, defining principles, and optimal outcomes.

To read a description of each of the webinars, click here. 

TOPICS:

  1. DOES NATIONAL PHARMACARE MEAN SAME COVERAGE AND SAME PUBLIC PAYER FOR EVERYONE? (AUGUST 8)  RECORDING WEBINAR 1
  2. ORIGINAL AND SIMILAR BIOLOGIC DRUGS: LOW COST, INDIVIDUAL CHOICE, OR BOTH? (AUGUST 15)RECORDING WEBINAR 2
  3. HOW PMPRB REGULATES NEW DRUG PRICES: WILL CHANGES HELP OR HURT ACCESS? (AUGUST 29)RECORDING WEBINAR 3
  4. DRUGS FOR RARE DISEASES: NATIONAL PHARMACARE OR SEPARATE PROGRAM? (SEPTEMBER 27)RECORDING WEBINAR 4
  5. HOW CAN “RIGHT PRICING” SUPPORT INNOVATION AND COST-EFFECTIVE ACCESS? (OCTOBER 15) RECORDING WEBINAR 5
  6. BEYOND THE FORMULARY: SMART PHARMACARE FOR 21ST CENTURY THERAPIES (OCTOBER)

 

National Pharmacare Webinar Notice

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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Event

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.

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Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

Shares

BECOME A MEMBER

Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.

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