Ontario Rare Diseases Working Group Releases Final Report

Rare Diseases Working Group Releases Report to Ontario Ministry of Health and Long Term Care.
Based on the recommendations in this report, and with the goal of helping patients in need and their families, the province will move forward with:
  • Supporting better patient care by establishing a centralized system where clinical expertise and educational resources on rare diseases will be available to health care providers across the province
  • Developing a plan to improve access to genetic testing
  • Creating an Ontario-specific rare disease registry that will help foster research and innovation in the discovery, management and treatment of rare diseases.