August 19, 2016 — Maureen Smith, Secretary of the Canadian Organization for Rare Disorders (CORD) has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as an ad-hoc member of its Advisory Panel on Rare Disease.
Maureen will join other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize research funding priorities and ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers. PCORI is an independent, non-profit organization authorized by US Congress to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions.
She was selected on the basis of her experience, expertise, and ability to contribute to the panel’s tasks and responsibilities. Panel members represent a broad range of healthcare stakeholder groups and perspectives, including patients, family caregivers, clinicians, drug and device makers, and researchers, among others.
More information about the Advisory Panel on Rare Disease, including its scope of work and a list of all members, is available on the PCORI website: http://www.pcori.org/get-involved/advisory-panels/advisory-panel-on-rare-disease/.
March 21, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
6th Annual Rare Disease Day Awards Gala Join us on Thursday evening, March 21st, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year. Cocktail reception at 6:00 pm followed by dinner at 7:00 pm Business or Smart Cocktail Attire Gala Ticket: $195 Patient Gala Ticket: $125 Table of 8: $1500