Final Webinar in CORD's 4 Part Summer Rare Disease Readiness Series
From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
📅 Tuesday, August 11, 2026
🕛 12:00 PM to 1:15 PM ET (Core program: 12:00 to 1:00 PM | Optional action discussion: 1:00 to 1:15 PM)
Canada has made important progress in rare disease diagnosis, treatment and access, but how well does the system work for patients in practice?
Join CORD for the final webinar in our 4 Part Summer Rare Disease Readiness Series, an interactive consultation that will help shape the forthcoming Rare Readiness Scorecard.
Using ATTR cardiomyopathy and spinal muscular atrophy as case studies, a live panel of patients and caregivers, health professionals, policy experts, data specialists and industry representatives, together with audience participants, will assess Canada's readiness across:
• Recognition, diagnosis and referral
• Timely and equitable treatment access
• Provincial implementation
• Integrated care
• Data, outcomes and accountability
• Priorities for the next phase of the Rare Disease Drug Strategy
Through live polling and discussion, you'll help identify what Canada should measure, where the biggest gaps remain, and what actions are needed to improve patient access.
Your voice matters. The findings will help refine national, provincial and disease specific Rare Readiness Scorecards and inform recommendations for RDDS Phase 2.