Rare Disease Day 2025 Conference

April 29 - 30 - The Westin Calgary Downtown: 320 4 Ave SW, Calgary

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Rare Disese Day 2025

* All registrations are final and non-refundable.

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Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.

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Latest News

Webinar 1: From Genomic Testing Readiness to Rare Disease System Readiness

Jun 23, 2026

Join us for Webinar 1, featuring Don Husereau (University of Ottawa) and Durhane Wong-Rieger (CORD) as they discuss the transition from genomic testing readiness to rare disease system readiness, and explore how to shape the next phase of Canada’s Rare Disease Strategy.