Rare Disease Day 2022
Rare Drug Strategy Consultations
Join CORD this spring for the opportunity of a lifetime. Have your say in building Canada’s Rare Disease Drug Strategy. Engage in two-part series with Webinar Primer on March 23 -24 and LIVE In-Person Conference in Ottawa on June 8 – 9. These will be highly interactive, solutions-oriented sessions using case studies of rare drug access from Canada’s archives, connecting to current access challenges and extending to emergent rare drug introductions. What are lessons we can learn and how can we apply these to building a “smarter” drug strategy for today and tomorrow?
March 23 – 24: Registration
Webinar Registration: https://bit.ly/3gmyp9J
Webinar Promo pdf: https://bit.ly/3sQNgiH
Do you want to get involved in Rare Disease Day 2022 but you don’t know where to start? From sharing your story to lighting up a monument in your city, here is a helpful list of the different ways that you can get involved in Rare Disease Day 2022: https://cutt.ly/eOThYQs
Event
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
BECOME A MEMBER
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
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