Events

Rare Disease Day 2017 Conference

Date: March 30 – 31, 2017
Location: Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC
REGISTER HERE

Living Rare: With Research, Possibilities are Limitless With Patients, Anything Imaginable is Achievable!

2-Day Conference: March 30-31, 2017

OBJECTIVES

  • Share experiences of living … enhanced by a rare condition
  • Connect with groups that improve rare living
  • Create inspired and inspiring solutions within Canada’s Rare Disease Strategy

Rare Disease Day 2017

UPDATED DRAFT AGENDA

Through videos, testimonials, and facilitated discussions, we will provide an opportunity to get to know the people living with the rare conditions and their patient groups or organizations. Each of the four panels will be organized around one of the four core pillars of Canada’s Rare Disease strategy: diagnosis, expert care, community support, and access to therapy. The fifth pillar, research, will be integral to addressing issues identified in each of the other areas.

REGISTER HERE

Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.