News

Ontario Rare Diseases Working Group Releases Final Report

Rare Diseases Working Group Releases Report to Ontario Ministry of Health and Long Term Care.
 
Based on the recommendations in this report, and with the goal of helping patients in need and their families, the province will move forward with:
 
  • Supporting better patient care by establishing a centralized system where clinical expertise and educational resources on rare diseases will be available to health care providers across the province
  • Developing a plan to improve access to genetic testing
  • Creating an Ontario-specific rare disease registry that will help foster research and innovation in the discovery, management and treatment of rare diseases.
Link to Report: Rare Diseases Report 2017
Link to: Media Bulletin

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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Event

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.

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Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

Shares

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