Each year, the government accepts submissions and ideas from organizations and individuals about how they should allocate funds in the upcoming budget. This is a natural opportunity for patient groups to share their thoughts and ‘asks’ with government – and ensures that your group is on record as an active participant in the political process. For example: CORD has made a brief submission to the government, seeking funding for implementation of the Ontario Government’s Rare Disease Working Group recommendations. Our submission can be viewed (here).
We strongly recommend that all groups seeking funding for any initiative – whether it be improved diagnostics, drugs, surgical treatments, or education – compile a brief submission and send it to the provincial government.
What you need to know:
All submissions will be reviewed in advance of the provincial budget being tabled, which is expected to happen in March. Should you have any questions, please feel free to reach out to us!
We need your support! Sign the petition for Funding of Spinraza for all Canadian patients affected by Spinal Muscular Atrophy (SMA) Cure SMA Canada, CORD, the Canadian SMA families and our supporters appeal to our provincial health ministers to provide all patients access to the only treatment available for this life threatening disease.
March 21, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
6th Annual Rare Disease Day Awards Gala Join us on Wednesday evening, March 21st, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year. Cocktail reception at 6:00 pm followed by dinner at 7:00 pm Business or Smart Cocktail Attire Gala Ticket: $195 Patient Gala Ticket: $125 Table of 8: $1500