Each year, the government accepts submissions and ideas from organizations and individuals about how they should allocate funds in the upcoming budget. This is a natural opportunity for patient groups to share their thoughts and ‘asks’ with government – and ensures that your group is on record as an active participant in the political process. For example: CORD has made a brief submission to the government, seeking funding for implementation of the Ontario Government’s Rare Disease Working Group recommendations. Our submission can be viewed (here).
We strongly recommend that all groups seeking funding for any initiative – whether it be improved diagnostics, drugs, surgical treatments, or education – compile a brief submission and send it to the provincial government.
What you need to know:
All submissions will be reviewed in advance of the provincial budget being tabled, which is expected to happen in March. Should you have any questions, please feel free to reach out to us!
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.
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