MEDIA ALERT: Canadian Organization for Rare Disorders urges Ontario to implement Canada’s first Rare Disease Strategy
TORONTO, Feb. 27, 2017 /CNW/ – On International Rare Disease Day, patient representatives from the Canadian Organization for Rare Disorders (CORD) will meet with John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and other MPPs to share their experiences of living with rare disorders.
CORD will also encourage Ontario to become the first Canadian jurisdiction to implement a Rare Disease Strategy, following Ontario’sannouncement of a Rare Disease Working Group at last year’s Rare Disease Day event. Concrete actions are needed to address gaps between patient needs and available resources for diagnosis, care and treatment.
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WHAT: |
Urging Ontario to take bold steps to implement Canada’s first Rare Disease Strategy. |
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WHEN: |
Tuesday, FEBRUARY 28, 2017 |
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8:30am |
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WHERE: |
Queen’s Park, 111 Wellesley St W, Toronto |
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“In Camera” Legislative Dining Room, Side Bar Room |
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WHO: |
Dr. Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders (CORD) |
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Dr. John Wallenburg, Chief Scientific Officer, Cystic Fibrosis Canada |
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John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care |
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Michael Harris, Critic for Research, Innovation & Science, Progressive Conservative Party of Ontario |
SOURCE Canadian Organization for Rare Disorders 
For further information: Durhane Wong-Rieger, Canadian Organization for Rare Disorders, (647) 801-5176, durhane@sympatico.ca
Event
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
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