CORD wishes to thank Innomar Strategies for their fundraising efforts to raise awareness for rare diseases.
The Canadian Organization for Rare Diseases (CORD) and Innomar Strategies have a long standing partnership sharing a common goal to enhance patient care and increase access to medication for patients with complex and rare therapeutic disorders.
Recently, Innomar associates personally donated over $4,000 to CORD in a SURPRISE fundraising event at their annual leadership meeting. Aligning to the meeting’s “boot camp” theme, volunteers stepped up to get a buzz cut in return for a donation to CORD.
In total, nine brave leaders took on the challenge, which included one VERY courageous female! Knowing that the proceeds would go to research and support for patients with rare disease, many other associates pledged money in support of their brave colleagues who had taken a little off the top.
Innomar Strategies president, Guy Payette, the first participant to get buzzed at the event, will be presenting this donation to CORD CEO and president, Durhane Wong-Rieger on December 2nd. (pictured above)
Now that’s buzz worthy news!
Thank you to the “buzz” participants (from left to right in the picture above):
MEDIA ALERT: Canadian Organization for Rare Disorders urges Ontario to implement Canada's first Rare Disease Strategy TORONTO, Feb. 27, 2017 /CNW/ - On International Rare Disease Day, patient representatives from the Canadian Organization for Rare Disorders (CORD) will meet with John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and other MPPs to share their experiences of living with rare disorders.
March 30, 2017
Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC
Date: March 30 - 31, 2017 Location: Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC REGISTER HERE Living Rare: With Research, Possibilities are Limitless With Patients, Anything Imaginable is Achievable! 2-Day Conference: March 30-31, 2017 OBJECTIVES Share experiences of living ... enhanced by a rare condition Connect with groups that improve rare living Create inspired and inspiring solutions within Canada’s Rare Disease Strategy Rare Disease Day 2017 UPDATED DRAFT AGENDA Through videos, testimonials, and facilitated discussions, we will provide an opportunity to get to know the people living with the rare conditions and their patient groups or organizations. Each of the four panels will be organized around one of the four core pillars of Canada’s Rare Disease strategy: diagnosis, expert care, community support, and access to therapy. The fifth pillar, research, will be integral to addressing issues identified in each of the other areas. REGISTER HERE Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.