Call for Nominations: CORD's 5th Annual Rarity Awards The award winners will be honoured at the CORD Rare Disease Day Gala on March 30, 2017 in Vancouver.
Deadline is: February 15, 2017.
LAUNCH OF A NEW CoNGO SUBSTANTIVE COMMITTEE NGO Committee for Rare Diseases, New York - November 11, 2016
CORD needs your support! MPP MacLeod's Private Member's Motion on a Compassionate & Catastrophic Care Program RARE PATIENT ADVOCATES NEEDED!
For Immediate Release: Patients Have Waited 12 Years for Rare Disease Drug Plan
A Message from the President to the Annual General Meeting of the Canadian Organization for Rare Disorders
22 Rare Diseases on 1st Canadian Newborn Screening List recommended by Health Ministers in January 2016. We need implementation now.
CORD’s Secretary, Maureen Smith has been appointed to PCORI’s Advisory Panel on Rare Disease. As an ad-hoc member, she will play a part in helping patients and those who care for them make better informed healthcare decisions
Show your Support for the Orphan Drug Regulatory Framework: Send a Template Letter to your Local MP (English and French). We once again need your help and that of your communities - please help spread the word through your networks.
Full Webex Posted for the Access to BIOSIMILARS in Canada: WEBINAR & Session on June 29. Dialogue with Canada’s leading regulatory and assessment experts: Health Canada Bureau of Biologics and Genetic Therapies (BGTD) and Canadian Agency for Drugs and Technologies in Health (CADTH)
Slides posted from the Up Close and Personal with pCPA Webinar
Health Canada Approves IMBRUVICA® (ibrutinib) for the Treatment of Waldenström’s Macroglobulinemia: Toronto, ON – May 12, 2016
Watch the CORD Statement in the House of Commons on March 10, 2016. Yellow scarves took over the House of Commons in support of rare disease patients and families!