CORD is truly indebted to all of the individuals, patient organizations, and corporations that contribute to advancing rare disease in Canada. This year, CORD’s 5th Annual Rarity Awards will once again recognize those who have demonstrated outstanding commitment and achievements toward overcoming the challenges of rare diseases and improving people’s lives. The nomination process is open to everyone. You are invited to submit a nomination for any or all of the award categories.
The award winners will be honoured at the CORD Rare Disease Day Gala on March 30, 2017 in Vancouver.
Deadline is: February 15, 2017.
To submit a nomination, please go to: www.surveymonkey.com/r/rddawards2017
Rare Disease Leadership Award
This award is presented to an individual who has demonstrated outstanding leadership in the rare disease community.
Policy Maker Award
This award is presented to a policy maker whose dedication and commitment to rare diseases has made a difference to the rare disease community.
CORD Volunteer Award
This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.
CORD Youth Leadership Award
This award is given to celebrate and recognize the contributions and achievements of young people in the rare disease community and impact in shaping the future.
This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.
Patient Organization Award
This award is presented to a CORD affiliate member group making outstanding contribution in patient support or advocacy.
This award is presented to a leading company who is dedicated and committed to developing and providing treatments to improve the lives of those with rare diseases.
MEDIA ALERT: Canadian Organization for Rare Disorders urges Ontario to implement Canada's first Rare Disease Strategy TORONTO, Feb. 27, 2017 /CNW/ - On International Rare Disease Day, patient representatives from the Canadian Organization for Rare Disorders (CORD) will meet with John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and other MPPs to share their experiences of living with rare disorders.
March 30, 2017
Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC
Date: March 30 - 31, 2017 Location: Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC REGISTER HERE Living Rare: With Research, Possibilities are Limitless With Patients, Anything Imaginable is Achievable! 2-Day Conference: March 30-31, 2017 OBJECTIVES Share experiences of living ... enhanced by a rare condition Connect with groups that improve rare living Create inspired and inspiring solutions within Canada’s Rare Disease Strategy Rare Disease Day 2017 UPDATED DRAFT AGENDA Through videos, testimonials, and facilitated discussions, we will provide an opportunity to get to know the people living with the rare conditions and their patient groups or organizations. Each of the four panels will be organized around one of the four core pillars of Canada’s Rare Disease strategy: diagnosis, expert care, community support, and access to therapy. The fifth pillar, research, will be integral to addressing issues identified in each of the other areas. REGISTER HERE Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.