CORD is truly indebted to all of the individuals, patient organizations, and corporations that contribute to advancing rare disease in Canada. This year, CORD’s 5th Annual Rarity Awards will once again recognize those who have demonstrated outstanding commitment and achievements toward overcoming the challenges of rare diseases and improving people’s lives. The nomination process is open to everyone. You are invited to submit a nomination for any or all of the award categories.
The award winners will be honoured at the CORD Rare Disease Day Gala on March 30, 2017 in Vancouver.
Deadline is: February 15, 2017.
To submit a nomination, please go to: www.surveymonkey.com/r/rddawards2017
Rare Disease Leadership Award
This award is presented to an individual who has demonstrated outstanding leadership in the rare disease community.
Policy Maker Award
This award is presented to a policy maker whose dedication and commitment to rare diseases has made a difference to the rare disease community.
CORD Volunteer Award
This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.
CORD Youth Leadership Award
This award is given to celebrate and recognize the contributions and achievements of young people in the rare disease community and impact in shaping the future.
This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.
Patient Organization Award
This award is presented to a CORD affiliate member group making outstanding contribution in patient support or advocacy.
This award is presented to a leading company who is dedicated and committed to developing and providing treatments to improve the lives of those with rare diseases.
June 14, 2017
Delta Hotel Toronto, 75 Lower Simcoe Street
Roadmap to Optimal Drug Access Amendments to Patented Medicines Regulations and Ontario Kids’ Pharmacare (OHIP+)DRAFT AGENDA WHAT WE WANT TO ACHIEVE Outcome: Each stakeholder to be able to provide meaningful input on Amendments to Patented Medicines Regulations benefitting from perspectives of others To that end Share expertise, knowledge, and evidence Exchange needs, interests, and concerns Deliberate toward common positions Recognize unique views In the end Expand mandate from simplistic singular focus of “protecting Canadians from excessive drug prices” to realistic collective goal of “ensuring all Canadians have access to best possible medicines at prices that are affordable today and invest in tomorrow.” * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.