We are very excited to announce that Maureen Smith, Executive Board Member and Secretary of CORD has been elected to the Rare Diseases International Advocacy Committee. The RDI Advocacy Committee is responsible for developing and recommending priorities, initiatives and policies for RDI. Congratulations Maureen for being a rare disease global advocate!
To read more information on the RDI Advocacy Committee: http://www.rarediseasesinternational.org/wp-content/uploads/2017/09/RDI-Advocacy-Committee_-Terms-of-Reference_September_17.pdf
We need your support! Sign the petition for Funding of Spinraza for all Canadian patients affected by Spinal Muscular Atrophy (SMA) Cure SMA Canada, CORD, the Canadian SMA families and our supporters appeal to our provincial health ministers to provide all patients access to the only treatment available for this life threatening disease.
March 21, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
6th Annual Rare Disease Day Awards Gala Join us on Wednesday evening, March 21st, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year. Cocktail reception at 6:00 pm followed by dinner at 7:00 pm Business or Smart Cocktail Attire Gala Ticket: $195 Patient Gala Ticket: $125 Table of 8: $1500