Show your Support for the Orphan Drug Regulatory Framework: Send a Template Letter to your Local MP

Fellow members of the rare diseases community:

Now is a critical time for our campaign to implement a federal orphan drug regulatory framework and an intergovernmental initiative to help fund rare disease treatments so that no Canadian is left behind.

Attached is a template letter that we urge you to consider writing to your MP.  French Template Letter

We once again need your help and that of your communities – please help spread the word through your networks. Letters to MPs don’t require any postage. Simply include all or part of the following messages, and thank you for contributing your voice to this important national effort.

FIRST: Find out who your MP is if you don’t already know by entering your postal code at this WEBSITE.

SECOND: either email or send by post (no postage required) a letter like our template attached here. Feel free to add your story or connection with rare disorders, as personalizing the message will help bring home the need for national action! (French Template Letter)

THIRD: if you get a response, share it with us by sending us a copy at


Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders