Fellow members of the rare diseases community:
Now is a critical time for our campaign to implement a federal orphan drug regulatory framework and an intergovernmental initiative to help fund rare disease treatments so that no Canadian is left behind.
We once again need your help and that of your communities – please help spread the word through your networks. Letters to MPs don’t require any postage. Simply include all or part of the following messages, and thank you for contributing your voice to this important national effort.
FIRST: Find out who your MP is if you don’t already know by entering your postal code at this WEBSITE.
SECOND: either email or send by post (no postage required) a letter like our template attached here. Feel free to add your story or connection with rare disorders, as personalizing the message will help bring home the need for national action! (French Template Letter)
THIRD: if you get a response, share it with us by sending us a copy at firstname.lastname@example.org.
President & CEO
Canadian Organization for Rare Disorders
March 21, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
6th Annual Rare Disease Day Awards Gala Join us on Thursday evening, March 21st, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year. Cocktail reception at 6:00 pm followed by dinner at 7:00 pm Business or Smart Cocktail Attire Gala Ticket: $195 Patient Gala Ticket: $125 Table of 8: $1500