News

Register Now: Rare Disease Day Conference & Awards Gala Celebration March 30 – 31, 2017

RareDay
Dear Friends,


The Canadian Organization for Rare Disorders invites you to Rare Disease Day 2017 taking place on March 30-31, 2017 and, for the first time ever, in Vancouver, BC. Through videos, testimonials, and facilitated discussions, we will provide an opportunity for stakeholders to explore how Canada’s Rare Disease Strategy can help address the challenges of “living rare” in Canada.

Also, please join us on Thursday evening, March 30th, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year.

Please see attached conference outline. We are counting on you to ‘give us a hand’ to make Rare Disease Day 2017 the best one yet!

Register Here: https://cofrd.wildapricot.org/event-2429599
* To receive member rates you must login at the top right hand corner of raredisorders.ca

CORD is offering travel bursaries to patient group representatives to help offset the cost of travel to the Rare Disease Day 2017 Conference. Apply at: https://www.surveymonkey.com/r/rdd17application

Purchase Gala Tickets Here: https://cofrd.wildapricot.org/event-2432201

 

Microsoft Word - Document1

President & CEO
Canadian Organization for Rare Disorders

 

 

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

Shares

Event

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.

Shares

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

Shares

BECOME A MEMBER

Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.

LEARN MORE