Canadian Organization for Rare Disorders News, Events and Current Issues

Newsmakers Breakfast

Thu, 23 Apr 2009 09:39:21 EST

Rare Disorders in Canada: "A Promise Not Kept"
Date: April 30, 2009
Location: Ottawa, Ontario
Hosted by the National Press Club of Canada

A Day at Parliament Hill

Thu, 23 Apr 2009 09:39:21 EST

Date: April 30, 2009
Location: Ottawa, Ontario
Let your voice be heard, register today for CORD's advocacy event on Parliament Hill. This event brings together patients, family members, patient group representatives to Ottawa to meet with Members of Parliament to discuss rare disorders.

N of 1: Working Together to Meet the Challenge of Rare Disorders

Thu, 23 Apr 2009 09:39:21 EST

Date: May 1-2, 2009
Location: Ottawa, Ontario
This conference celebrates every patient as an individual and recognizes the special challenge of disorders shared by only a few.

Canada's "Chance for Life" Strategy

Thu, 23 Apr 2009 09:39:21 EST

Canadians with rare disorders need timely access to innovative therapies. Many of these represent the only effective therapy for severe, life-threatening disorders.

Position Paper on Canada's Orphan Drug Policy

Thu, 23 Apr 2009 09:39:21 EST

Canadians suffering from rare debilitating or life threatening diseases need an Orphan Drug Policy that will assure Canadians with rare diseases have timely affordable access to the best therapies and provide competitive incentives for Canadian-based companies.

Private Members Motion (M-426)

Thu, 23 Apr 2009 09:39:21 EST

On May 17, the House of Commons passed a Private Members Motion (M-426) on Rare Diseases. MP Don Bell from North Vancouver worked with members of all parties to gain support for this initiative.