Policy Leadership Award
This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.
Presented to: Don Bell
This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.
Presented to: Cathy Evanochko
Scientific Leadership Award
This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.
Presented to: Anne Junker
Patient Organization Award
This award is presented to a CORD Affiliate Member group making outstanding contribution in patient support or advocacy.
Presented to: Network of Rare Blood Disorder Organizations (NRBDO)
This award is presented to a leading company that is dedicated and committed to developing and providing treatments to improve the lives of those with rare diseases.
Presented to: Sanofi Genzyme
November 6, 2017 - November 7, 2017
Hyatt Regency Toronto, 370 King St W
A Moon Shot for Rare Disorders: Leave No one Behind Objectives of Conference Create a shared understanding of the patient journey and what “good” looks like Mobilize all stakeholders around common vision for Rare Disease Canada Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needs Conference Outline Special group discounted room rate $210 before October 4, 2017 Hotel Booking: https://aws.passkey.com/e/49287903 CORD is offering travel bursaries to patient group representatives to help offset the cost of travel. Application: https://www.surveymonkey.com/r/2017cordfallconf * To receive CORD member rates you must login Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.