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2017 Rare Disease Rarity Heroes Awards Winners

Policy Leadership Award


This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.

Presented to: Don Bell

 

Volunteer Award


This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.

Presented to: Cathy Evanochko

 

Scientific Leadership Award


This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.

Presented to: Anne Junker

 

Patient Organization Award


This award is presented to a CORD Affiliate Member group making outstanding contribution in patient support or advocacy.

Presented to: Network of Rare Blood Disorder Organizations (NRBDO)

 

Corporate Award


This award is presented to a leading company that is dedicated and committed to developing and providing treatments to improve the lives of those with rare diseases.

Presented to: Sanofi Genzyme