News

2017 Rare Disease Rarity Heroes Awards Winners

Policy Leadership Award

This award is presented to an individual whose leadership in policy on rare diseases has made a significant contribution to the rare disease community.

Presented to: Don Bell

 

Volunteer Award

This award is presented to an individual who has made an outstanding contribution to CORD and the rare disease community on a volunteer basis.

Presented to: Cathy Evanochko

 

Scientific Leadership Award

This award is presented to a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community.

Presented to: Anne Junker

 

Patient Organization Award

This award is presented to a CORD Affiliate Member group making outstanding contribution in patient support or advocacy.

Presented to: Network of Rare Blood Disorder Organizations (NRBDO)

 

Corporate Award

This award is presented to a leading company that is dedicated and committed to developing and providing treatments to improve the lives of those with rare diseases.

Presented to: Sanofi Genzyme

Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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Event

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.

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Press Releases

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD). The donation was made in partnership with Bayshore Specialty Rx to support individuals in Canada who are affected by rare diseases.

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