CORD wishes to thank Innomar Strategies for their fundraising efforts to raise awareness for rare diseases.
The Canadian Organization for Rare Diseases (CORD) and Innomar Strategies have a long standing partnership sharing a common goal to enhance patient care and increase access to medication for patients with complex and rare therapeutic disorders.
Recently, Innomar associates personally donated over $4,000 to CORD in a SURPRISE fundraising event at their annual leadership meeting. Aligning to the meeting’s “boot camp” theme, volunteers stepped up to get a buzz cut in return for a donation to CORD.
In total, nine brave leaders took on the challenge, which included one VERY courageous female! Knowing that the proceeds would go to research and support for patients with rare disease, many other associates pledged money in support of their brave colleagues who had taken a little off the top.
Innomar Strategies president, Guy Payette, the first participant to get buzzed at the event, will be presenting this donation to CORD CEO and president, Durhane Wong-Rieger on December 2nd. (pictured above)
Now that’s buzz worthy news!
Thank you to the “buzz” participants (from left to right in the picture above):
November 6, 2017 - November 7, 2017
Hyatt Regency Toronto, 370 King St W
A Moon Shot for Rare Disorders: Leave No one Behind Objectives of Conference Create a shared understanding of the patient journey and what “good” looks like Mobilize all stakeholders around common vision for Rare Disease Canada Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needs Conference Outline Special group discounted room rate $210 before October 4, 2017 Hotel Booking: https://aws.passkey.com/e/49287903 CORD is offering travel bursaries to patient group representatives to help offset the cost of travel. Application: https://www.surveymonkey.com/r/2017cordfallconf * To receive CORD member rates you must login Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.