Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.
Learn MoreJoin us Feb. 29th for our march on Parliament Hill!
📢 Attention Rare Disease Community: On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our #FightForOurLivesadvocacy (which calls on decision-makers to released promised funding for rare disease treatments), we are organizing a march on Parliament Hill. The goal is to make some noise and let leaders in Ottawa know that they need to release promised funding for rare disease treatments without delay!! If you’re in the Ottawa area (or planning to travel) and would like to join us for our march on Parliament Hill, here are the details: When: February 29th, 10:15-11:00amWhere: Centennial Flame outside Parliament (111 Wellington Street)Logistics: We are meeting at the Marriott Hotel (100 Kent Street) at 10:00am in the Victoria Ballroom (2nd Floor). At 10:15 am we will walk together to the Centennial Flame outside of Parliament, directly in front of the Peace Tower / Centre Block. If you have mobility challenges or can’t make it to the hotel for 10:15, please meet us directly at the Centennial Flame.Who can join? Anyone and everyone! Tell your friends and members of your community. The more of us there are, the more noise we’ll make! Parliamentarians will be joining us as well and media, so we are hoping for coverage in the media and statements in the House of Commons on Thursday.Need help? If you have any questions or need further assistance, please contact one of our organizers: Hilary Wong-Rieger (hilary@raredisorders.ca) or Jodie Kiss (jkiss@3sixtypublicaffairs.com). We hope to see you there! If you can’t make it out to the march, but want to help, please follow the conversation on social media (#FightForOurLives) and amplify our message by liking and retweeting posts from the Canadian Organization for Rare Disorders (InX.com @raredisorders, Facebook @RareDisorders) Instagram @raredisorders_cord) and importantly – sharing our “take action” campaign through www.fightforourlives.ca Let's unite as a community and show Canadian governments that our lives matter!
RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall in Amherst Nova ScotiaBrampton Clock TowerBritish Columbia LegislatureBritish Columbia PlaceCalgary TowerEdmonton High Level BridgeEdmonton TowerFred A. Lundy bridge in Newmarket, ONMississauga City HallNanaimo BastionNiagara Falls (10:00pm – 10:15pm.) [Live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str]Niagara sign in Thorold/Niagara regionOakville Town HallOlympic Cauldron Vancouver Convention CentrePeterborough City HallSales Of Light VancouverScience World Vancouver (FEB 28th)Signal Hill in St. John’s, NLThe Hamilton SignToronto CN TowerToronto Sign in Nathan Phillips SquareVaughan City HallVancouver Convention CentreThe Peace Bridge between Canada and the US Winnipeg Sign Winnipeg Bridge Let us know if there are other Canadian illuminations to add. Tag us on social media @raredisorders (Twitter/X), @raredisorders_cord (Instagram) or email us at info@raredisorders.ca with your photos of the monuments and Rare Disease Day events.
Rare Disease Day Summit: Join CORD in Ottawa for Rare Disease Day, February 28 - 29, 2024! Final Agenda! Come join us on a March to the Hill!
In-Person RegistrationVirtual RegistrationFinal Agenda We invite you to take a moment to review the Agenda for Rare Disease Day Summit. We're thrilled about the amazing presenters and activities lined up that you won't want to miss. Additionally, we'll be honoring our rare hero award winners and hosting the "Taking Message to Parliament Hill" event, where we'll march together to Parliament Hill. All attendees are invited and encouraged to join us for this impactful event. And of course, don't forget to mark your calendar for our Networking Cocktail Reception on Feb 28th, included with your conference registration for in-person attendees. Join us Feb. 29th for our march on Parliament Hill! for more information visit: https://www.raredisorders.ca/join-us-feb-29th-for-our-march-on-parliament-hill/ Travel Scholarship Guidelines CORD RDD Summit 2024_FINAL AgendaDownload CORD RDD Summit 2024FINAL2 AgendaDownload