CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info

Current Events

	CORD is inviting you to participate in upcoming Consultations on Canada's Orphan Drug Regulatory Framework Dates/Locations: May 31, 2013 EDMONTON June 3, 2013 MONTREAL June 11, 2013 VANCOUVER » Edmonton agenda » Montreal agenda » Vancouver Agenda » Registration info CORD Rare Disease Day Hero News Release Rare Heroes Applauded at Annual Rare Disease Day Gala Celebration. » View press release Rare Disease Day Press Release: New Brunswickers with Rare Diseases Falling between Cracks in the NB Health Care System. » View press release 5th Annual Rare Disease Day Conference 2013, now held in Toronto Date: Feb 27 - 28, 2013 Location: Pantages Hotel, 200 Victoria St., Toronto, Ontario » Agenda » Presentations Day 1 » Presentations Day 2
	CORD Fall 2012 Newsletter For our latest editon of the CORD Newsletter please click here to download.
	Rare Disease Publication by Mediaplanet an Independent supplement to the National Post. We are excited the share this Rare Disease Publication. » Click here to read full publication.
	Canadian MPN Network Meeting Date: Nov 2 - 3, 2012 Time: 8:30 am - 4:30 pm Location: Hyatt Regency Toronto on King 370 King Street West, Toronto, Ontario » MPN Network Invite and Agenda » Dr. Sirhan Presentation » Dr. Gupta Presentation » D. Wong-Rieger Presentation » S. Simoneau Presentation

Genome Canada grant results are now official
» Official grant results
» Read more

Kirsty Duncn MP petition she tabled in the House of Commons regarding the Rare Disease Award Gala.
» Read more
» Link to Hansard

Maureen Smith, Secretary of CORD, represents importance of regulated and reimbursed access to off-label drugs for fee diseases.
» Read more
» Link to hearing

Congratulations to all the winners of the first-ever CORD Rarity Awards held on Feb 28, 2013.
Political Leadership: Joy Smith, MP and Kirsty Duncan, MP
Public Policy: David K. Lee Health Canada
Patient Leadership: Canadian Organization for Rare Disorders
Health Professional Leadership Dr. Cheryl Greenberg
Scientific Excellence Dr. Lorne Clarke
Award of Honour: Rare Disease Foundation (BC)
Award for Volunteerism: Durhane Wong-Rieger
Rare Honour Awards: Barry Katsof, Jonathan Pitre, Dr. Joanna Rommens, Maureen Sauve, Dr. Schellenberg and PID Clinic

Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework
TORONTO, Oct. 3, 2012 - The Canadian Organization for Rare Disorders, on behalf of the 2.8 million Canadians with rare disorders, welcomes Health Minister Aglukkaq's announcement of the "first ever Canadian framework to increase access to new treatments and information" and the launch of Orphanet-Canada. » View press release

All I see is Hope - One woman's Story of Overcoming the Odds. CORD Board Member, Maureen Smith's struggle with her own rare disorder and how medications have drastically improved her life. Click here to watch her story.

International Alliance of Patients' Organizations
CORD encourages all patient groups to join IAPO. The new IAPO Membership Guide can be found below » Read more

On-line Support Group Model
Alpha-1 Canada has been developing an On-Line Support Group Model for patients. For more info, contact Jim.
» Online Support Group Leader Manual and Resource Guide

EURODIS Newsletter
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 434 rare diseases patient organisations in over 43 countries. » Sign up

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