CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info

Current Events

Canada's Rare Disease Strategy
CORD is excited to announce Canada’s first-ever Rare Disease Strategy with five key goals to improve care and treatment of rare disorders: improving early detection and prevention, providing better care, enhancing community support, providing access to promising therapies and promoting innovative research.

Executive Summary (English)
Executive Summary (French)

Canada's Rare Disease Strategy (English)
(French version of the full strategy document will be available soon)

Download Canada's Rare Disease Strategy and take action by signing our online petition here.

Video from the Press Release on Canada's Rare Disease Strategy

The Globe and Mail article: Group releases strategy to help Canadians with rare diseases get care

Photo Album from Canada's Rare Disease Strategy Launch.

CORD gives feedback on CADTH-PCODR Open Meetings and Transparency
» Click here to view full feedback

Rare Disease Day 2015 Conference: Strategy, Research Updates, Training
March 5 - 7, 2015 Toronto ON
» Click here for agenda

Rarity Awards Dinner Gala with Honourary Gala Chair and Keynote Speaker, The Honourable James Moore, Minister of Industry
March 5, 2015 Toronto ON
» Click here to view photos from the Gala

CORD Urges Ministers of Health to Adopt Proven Model for Improved Access to Treatments for Rare Disorders
»
Click here for full press release










 


Wyatt Health Management is proud to present CDR Tracker ® for Patients CDR Tracker for Patients, allows you to search an online database to see if and how your drug is covered by public drug plans. Click here to access CDR Tracker for Patients

» Click here for Summary of the Summit for Access to Drugs for Rare Diseases in Canada

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