CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info
CORD is inviting you to participate in upcoming Consultations on Canada's Orphan Drug Regulatory Framework
Rare Disease Day Press Release:
5th Annual Rare Disease Day Conference 2013, now held in Toronto
CORD Fall 2012 Newsletter
Rare Disease Publication by Mediaplanet an Independent supplement to the National Post.
» Click here to read full publication.
Congratulations to all the winners of the first-ever CORD Rarity Awards held on Feb 28, 2013.
Political Leadership: Joy Smith, MP and Kirsty Duncan, MP
Public Policy: David K. Lee Health Canada
Patient Leadership: Canadian Organization for Rare Disorders
Health Professional Leadership Dr. Cheryl Greenberg
Scientific Excellence Dr. Lorne Clarke
Award of Honour: Rare Disease Foundation (BC)
Award for Volunteerism: Durhane Wong-Rieger
Rare Honour Awards: Barry Katsof, Jonathan Pitre, Dr. Joanna Rommens, Maureen Sauve, Dr. Schellenberg and PID Clinic
Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework
TORONTO, Oct. 3, 2012 - The Canadian Organization for Rare Disorders, on behalf of the 2.8 million Canadians with rare disorders, welcomes Health Minister Aglukkaq's announcement of the "first ever Canadian framework to increase access to new treatments and information" and the launch of Orphanet-Canada. » View press release
All I see is Hope - One woman's Story of Overcoming the Odds. CORD Board Member, Maureen Smith's struggle with her own rare disorder and how medications have drastically improved her life. Click here to watch her story.
International Alliance of Patients' Organizations
CORD encourages all patient groups to join IAPO. The new IAPO Membership Guide can be found below » Read more
On-line Support Group Model
Alpha-1 Canada has been developing an On-Line Support Group Model for patients. For more info, contact Jim.
» Online Support Group Leader Manual and Resource Guide
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 434 rare diseases patient organisations in over 43 countries. » Sign up
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