Canada's Rare Disease Strategy is a five-point action plan that will address unnecessary delays in testing, wrong diagnoses and missed opportunities to treat rare diseases.
CORD has partnered with the Economic Club of Canada (ECC) to present Canada’s Rare Disease Strategy in Toronto, Edmonton, Ottawa, Montreal and Vancouver.
EURORDIS Rare Diseases Europe News, September 2015: Second member webinar on European Reference Networks, The EURORDIS Photo Contest 2015, Rare Disease Day 2016 theme and slogan and other news.
The Canadian Organization for Rare Disorders hereby gives notice of its Annual General Meeting; Sept 22, 2015 at 4:00pm EST via Teleconference
Assuring Affordability and Sustainable Access to Orphan Drugs. It is important to remember that the only acceptable solutions are those that assure rare disease patients get access to the right drugs in a timely fashion.
The Canadian Organization for Rare Disorders is pleased to “partner” with the PARTNERS initiative.
Help Ontario Recruit Its First Patient Ombudsman. Province Invites the Public to Provide Feedback on Selection Process
Take Action by Signing our Online Petition to support Canada’s Rare Disease Strategy!
The Globe and Mail article: Group releases strategy to help Canadians with rare diseases get care