Attention Canada’s Rare Disease Community! Have you been asked to attend one of the Health Canada consultations? If so, would you like to collaborate with CORD to ensure our voices are heard?
Canada4Rare initiative aims to ‘Save Rare Lives!’ Join Canada's rare drug challenge and #SaveRareLives Sign the petition & write your MP's!
Rare Disease Day 2022 Activities: Webinar Registration (February 24), Canadian Illuminations Schedule and Resources on Getting Involved with Rare Disease Day
RWD/RWE for Rare Disease Drugs Webinar. An introductory Real-World Data and Real-World Evidence Webinar
CORD calls for PMPRB to rescind imminent and arbitrary pricing changes for “grandfathered” drugs and federal government to return PMPRB to original mandate to protect against “excessive” drug prices.
2021 Election Toolkit for Patients: This election toolkit is designed to provide ideas and help patients, caregivers and family members that are part of the rare disease community to navigate the 2021 federal election.
CORD Submission to Pre-Budget Consultations on 2022 Budget: Ensure timely implementation of Rare Disease Drug Strategy and Re-Focus PMPRB
CORD & RDI Call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their Families.
CORD responds to Health Canada’s Clinical Trials Regulatory Modernization Initiative
PMPRB Regulations: Use Delay to Get it Right for Canadian Patients. June 28, 2021 CORD emphatically supports the federal government’s recent decision to delay the implementation of the Patented Medicines Regulations to January 1, 2022
Paddle with a Purpose Fundraiser for CORD- William Aiello the Weather Anchor for CTV News Northern Ontario will be taking on a journey of stand up paddle boarding for 24h in memory of his brother in law, Mario La Valle.
Canadian Organization for Rare Disorders submission to PMPRB GMEP. The PMPRB wants to measure the impacts of its own rules?? We need a neutral third party to do this assessment. Read CORD’s submission