Events

Event

Rare Disease Day 2018 Conference

March 21, 2018 - March 22, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
Canada‚Äôs Pathway to World Class Excellence in Rare Diseases Draft 2-Day Conference Outline CORD is offering travel bursaries to patient group representatives to help offset the cost of travel and accommodation to the Rare Disease Day 2018 Conference in Ottawa. The travel bursary is meant for those patients and caregivers whose own groups would not be able to fully cover the cost of their participation. Scholarship Application: https://www.surveymonkey.com/r/RDD18Travel Book before March 2nd to receive the Delta Hotels Ottawa City Centre room rate of 195.00 CAD per night. Click here to book your group rate online for Canadian Organization for Rare Disorders Conference. Pre-Conference Patients Day Why: Canadian pathways for rare disease drugs give access to some patients but significant delay or deny access to many others.  Those relying on public drug plans have much poorer access than those with private drug coverage. What: A gathering of RD patients and families, some getting therapy, some still waiting, and some denied life-saving therapies, unite to make their stories known. Where: Parliament Hill in Ottawa, prior to meetings with individual MPs When:  March 20, 2018  There is no cost to attend the Pre-Conference Patients Day, however, participants must pre-register by sending an email to: info@raredisorders.ca  * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.

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