Don’t Miss: October 7 Launch Canada’s Rare Disease Strategy in Edmonton, AB

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Edmonton, AB (Sept 28, 2015) – The Canadian Organization for Rare Disorders (CORD) through a series of Economic Club of Canada luncheons will be discussing the urgent need for a Canadian Strategy for Rare Diseases.

In Canada, disability and death due to cancer, cardiovascular disease, and diabetes have dropped by 50% and more over the past 20 to 50 years due in large part to world-class national strategies. At the same time, Canadians with rare diseases still struggle to access timely and appropriate care, resulting in unnecessary delays in testing, wrong diagnoses, children with physical and mental developmental challenges, and premature death. Canada lags behind more than 35 other countries that have already developed national plans for rare diseases. We call upon all Canadians to join us calling for the implementation of Canada’s Rare Disease Strategy to provide the same hope and treatment as available to Canadians with common conditions and rare disease families around the world.


Durhane Wong-Rieger, President & CEO, Canadian Organization for Rare Disorders

Edward Gudaitis, General Manager, Gilead Sciences Canada Inc

Clarissa Desjardins, Founder and CEO, Clementia Pharmaceuticals


Mr. Fred Horne, Former Minister of Health, Alberta


Panel discussion: “A Rare Disease Strategy for All Canadians”


Wednesday, October 7, 2015

11:30 a.m. Guest/media registration begins
12:15 p.m. Panel discussion
1:30 p.m. Event concludes


The Westin Edmonton
10135-100 Street, Edmonton

Click here to purchase tickets for the Edmonton event through the Economic Club of Canada

To confirm attendance or for more information about the event, please contact:

Kara Merpaw
The Economic Club of Canada
O: 416-306-0899 M: 416-333-879


Sponsored By:


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