In August 2015, the family of Nicole “Nikki” Butler provided a donation to CORD, in memory of their 23-year-old daughter who passed away in May from complications of dyskeratosis congenita. Dyskeratosis congenita is a disorder affecting mucous membranes, affecting approximately 200 people worldwide, 20% being female.
Nicole’s family chose CORD, in the hopes that we will keep working hard to raise awareness about the disorder and to emphasize the importance of genetic research to the government, “so that someday a cure can come about for some of these disorders.”
CORD wishes to thank the Butler family and commits to following through on their wishes to raise awareness for rare diseases.
March 21, 2018
Delta Hotels Ottawa City Centre: 101 Lyon Street North, Ottawa
6th Annual Rare Disease Day Awards Gala Join us on Thursday evening, March 21st, when CORD will host its annual Rare Disease Day Awards Gala. We will recognize those individuals and organizations that have made extraordinary contributions to the Canadian rare disease community over this past year. Cocktail reception at 6:00 pm followed by dinner at 7:00 pm Business or Smart Cocktail Attire Gala Ticket: $195 Patient Gala Ticket: $125 Table of 8: $1500