Donation to CORD by Family of Daughter with Dyskeratosis Congenita

In August 2015, the family of Nicole “Nikki” Butler provided a donation to CORD, in memory of their 23-year-old daughter who passed away in May from complications of dyskeratosis congenita. Dyskeratosis congenita is a disorder affecting mucous membranes, affecting approximately 200 people worldwide, 20% being female.

Nicole’s family chose CORD, in the hopes that we will keep working hard to raise awareness about the disorder and to emphasize the importance of genetic research to the government, “so that someday a cure can come about for some of these disorders.”

CORD wishes to thank the Butler family and commits to following through on their wishes to raise awareness for rare diseases.

Nikki's Photo for Cord