CORD COVID-19 Patient Member Survey

Dear CORD Patient Member

We hope that you are managing as well as can be expected at this time of unexpected turmoil and crisis. Our hearts go out to our rare disease patients and caregivers who are facing many challenges such as compromised immune systems, access to healthcare, and vastly reduced services. As a rare disease community, we are accustomed to overcoming challenges and supporting each other; a source of strength for all of us during this challenging time.

To help us at CORD better understand how COVID-19 is affecting you and your patient community, we ask that you take a few minutes to respond to this short survey. We would like to be able to share our experiences but more importantly we would like to know if there are issues affecting us collectively that we as CORD can help address. The impacts of COVID-19 has far reaching consequences on the healthcare system that we rely on; therefore, it is important that the urgent needs of patients with rare diseases are recognized and addressed.

We have also included a few questions that will help us in planning our strategic direction and actions over the next year and beyond.

Please check the CORD website for COVID-19 updates and links to resources. Please do share your own resources or linkages. And do let us know if there are urgent issues that we should share or help address.

Please feel free to send the survey to your members through your contact list. If you have any questions, please feel free to reach out to us directly.

Thank you in advance for all that you are doing and for your support of CORD’s initiatives.

To access the survey: https://www.surveymonkey.com/r/CORD_COVID

Durhane Wong-Rieger
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
p: 416-969-7435
m: 647-801-5176
www.raredisorders.ca