News
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Help us Keep the Momentum Going!

Hello all:

We have had an amazing two-days in Vancouver, starting with a panel discussion on Canada’s Rare Disease Strategy with the Economic Club of Canada followed by a patient rally on Tuesday calling on all health ministers to implement the Strategy now. Patients rallied again on Wednesday at the hotel where all health ministers are meeting and continued to raise awareness on the Strategy.

Our efforts have led to some great media coverage, including to date:

We encourage you to keep the momentum going by visiting us on @raredisorders and www.facebook.com/RareDisorders to retweet and like our posts.

We thank you all for helping us make our Vancouver activities a great success and we will continue our efforts towards making Canada’s Rare Disease Strategy a reality for all Canadians! In particular, a special thanks for all the patients, patient advocates and other partners who supported and attended our discussion panel and took part in the rally in Vancouver.

Durhane Wong-Rieger
President & CEO
Canadian Organization for Rare Disorders (CORD)